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"I feel it is very unfair"

About: Aberdeen Royal Infirmary / Respiratory Medicine (Breathing and Lung Problems)

(as a relative),

My husband was referred to the Sleep Apnoea service at the Aberdeen Royal Infirmary (NHS Grampian) 3 years, 8 months ago.

He has waited patiently for his appointment, been contacted by the Clinic on a couple of occasions to see if he wanted to remain on the waiting list for assessment, (Yes!), and been reassured on at least 2 occasions since the summer of 2023 that he was "near the top and should hear from them soon".  He telephoned this month to enquire how much longer the wait would be, only to be told they are booking urgent cases only at the moment.

I feel it is very unfair on people like my husband, who has waited so long to be seen, for NHS Grampian to change the goalposts like this without patients on their Sleep Apnoea waiting list being notified. What might start out as a routine referral for assessment may have become urgent in the intervening years, but how can that be gauged if patients have not been told that only urgent cases are now being seen? What is going to happen to all those patients who have waited years for an assessment and are now being sidelined? He has no idea when, or even if, he is ever going to get an appointment now. I feel the Sleep Apnoea service should be writing to all "routine" patients on their waiting list advising them that only urgent cases are being reviewed, if only to give them the opportunity to discuss with their GPs if they feel their lengthy wait has potentially affected the seriousness of any underlying condition that might merit an urgent review now.

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Responses

Response from Ciorstan Blake, Deputy Service Manager, Medicine & Unscheduled Care – Long Term Conditions Pathway, NHS Grampian 2 months ago
We are preparing to make a change
Ciorstan Blake
Deputy Service Manager, Medicine & Unscheduled Care – Long Term Conditions Pathway,
NHS Grampian
Submitted on 19/02/2024 at 09:46
Published on Care Opinion at 10:22


Good morning Simpss60,

Please accept our sincere apologies for the poor communication that you have experienced in relation to the challenges that the service is experiencing.

Due to the Covid-19 pandemic combined with a national shortage of CPAP machines, the waiting list for the Sleep Service in Aberdeen increased significantly, resulting in a 4+year wait for many patients. As a result, the Sleep Service has only been able to offer appointments to patients who have been clinically vetted to the urgent waiting list whilst the Respiratory Service explore options to resolve the waiting list.

I am able to confirm that the Respiratory Service has begun preparations to write to patients on the routine waiting list, however there was agreement to delay this letter until a decision had been agreed around the process for addressing this significant waiting list.

Please, again, accept our sincere apologies for the significant waiting time that your husband has experienced and for the poor communication.

Kind Regards

Ciorstan

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