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"Waiting lists"

About: Royal Infirmary of Edinburgh at Little France / Trauma and Orthopaedics

(as a service user),

I have a prolapsed disc. My nerves are completely compressed on my left leg and partly on my right. It's been like this for well over a year. I've had an MRI which is now out of date, due to everything taking so long. I had a nerve root block injection in October. I had to chase the hospital about a follow-up due to the injection not working. I called again recently as I'd still heard nothing, to be informed that I was put on a waiting list to receive a telephone appointment. 

I can't cope with the pain! I called the Royal infirmary again to see when I should expect my letter for my telephone appointment since I was referred 6 weeks ago. I was informed the waiting list for this is up to a year! For a telephone appointment! Then god knows how long after before anything else is done. What good is a telephone appointment?! I believe it's just another delaying tactic. 

Today I broke down. I like to think of myself as a reasonably strong person with a good pain threshold. These past 2 days - I haven't been able to even stand and make dinner for my family. I then couldn't even sit on the sofa because I couldn't bend. Today, I was making my gran a cup of tea and I couldn't. I crumbled because the pain was so severe I couldn't stand for the 5 minutes it takes to make a cup of tea.

My mum asked to take me to A&E because of how bad it is but I declined. I declined because I've been sent before (by my GP) and the hospital don't do anything unless you are incontinent. I then started looking into seeing the same consultant privately - since there's no waiting lists for that. However, due to being off sick and on SSP I simply can not afford this. I just need help to live a normal life. I have a young child who needs me, but right now he's the one trying to look after me. He has to watch me cry due to the excruciating pain I'm in. 

I don't know what's happened to the NHS. Covid was horrendous and made such an impact on the  but that can't still be used as an excuse. 

I really need help. I simply cannot go on like this and other than reach out on here - I don't know what else to do. 

I need to stress how much this is impacting my life. It's effecting my time with my son. It's effecting my home life. It's effecting my work. It's effecting my income. It's effecting my sex life! It's effecting my mental health. It's effecting my weight. It's effecting everything! 

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Responses

Response from Louise Davies, Patient Experience Officer, Patient Experience Team, NHS Lothian 16 months ago
Louise Davies
Patient Experience Officer, Patient Experience Team,
NHS Lothian
Submitted on 07/02/2024 at 12:53
Published on Care Opinion at 12:53


picture of Louise Davies

Dear thubanqq54

Thank you for sharing your feedback with us via Care Opinion.

I'm really sorry to hear you have a prolapsed disc, and that you are experiencing such delays in follow up and treatment. I appreciate this must be a very difficult time and is having a severe impact on your day to day life.

I have highlighted your feedback to the Clinical Management Team and asked them to look into this. I am hopeful they will be able to provide some information or advice.

Thank you

Louise

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Response from Aris Tyrothoulakis, Director, NHS Lothian 16 months ago
Aris Tyrothoulakis
Director,
NHS Lothian
Submitted on 09/02/2024 at 17:46
Published on Care Opinion at 17:46


Dear 'thubanqq54'

I am really sorry to read about your experience and the impact that these delays are having on your personal and professional life.

Unfortunately, as our waiting lists increased over the last years, a lot of our patients are still experiencing long waits to access care despite efforts to increase our capacity and reduce waiting times.

If you could contact our Patient Experience Team and send us some additional details, we will look into your record and get in touch to discuss what options are available for you.

Kind regards,

Aris

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Update posted by thubanqq54 (a service user)

I appreciate you getting in touch.

I fully understand the waiting lists are long and I am most definitely not the only person affected. My concern is literally not being able to wait because of how much pain I am in.

Could you tell me the best way to contact them please?

Response from Louise Davies, Patient Experience Officer, Patient Experience Team, NHS Lothian 16 months ago
Louise Davies
Patient Experience Officer, Patient Experience Team,
NHS Lothian
Submitted on 12/02/2024 at 10:12
Published on Care Opinion at 10:12


picture of Louise Davies

Hi thubanqq54

You can contact the Patient Experience Team by sending an email to feedback@nhslothian.scot.nhs.uk or if you would prefer to call, the number is 0131 536 3370. Phone lines are open Monday to Friday 9am to 2pm.

Please make reference to this Care Opinion Story and provide your contact details.

Thank you

Louise

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