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"I feel ignored every time I raise concerns"

About: Adult Mental Health Services - Community (County) / Gedling Local Mental Health Team (LMHT) The Manor Surgery

(as a service user),

Since the change of management, I have had my CPN changed repeatedly. I feel it’s a waste of time emailing management as they aren’t interested. The communication has been none existent. I feel ignored every time I raise concerns with the team lead and clinical lead. I did post on here before and for the first time they were interested to meet me. We had a meeting which seemed positive but unfortunately it was all talk. Promises made were just forgotten about. 

I have been under the care of Manor Road for 7+ years. I used to have hour-long appointments every week, sometimes twice a week with a CPN. I have not had any CPN since finding out I was pregnant. I have bipolar and a medically high risk pregnancy. I’m on a lot of medication but was told I wouldn’t see my psychiatrist because I’d be referred to perinatal. Upon chasing this I’ve been told I won’t be referred to perinatal as it’s unnecessary so I’m taking medication I don’t know if it is safe. I’ve stopped medication I believe was unsafe but nobody plans to talk to me about the medication or the impact this will have on me/my baby.

I have emailed Manor Road so many times explaining how much I am struggling mentally. I reached out to the clinical lead again recently and reminded them what was discussed/agreed in our meeting. I was promised support. I was promised help. I was promised they would get back to me about perinatal but they have taken a u-turn on it all.

I received an email from a generic reception email (I asked and explained strongly I will not communicate via a generic email. I have severe paranoia) off a CPN I don’t know just to say they will drop off my medication going forwards. So I am getting no psychiatric support still. Just medication dropped off at my doorstep that nobody knows is safe and I keep telling them it’s not helping but I have no one to talk about it to. 

I am addicted to diazepam and I was issued a fifth of my dose for the week which 3 people checked and nobody noticed. There’s been issues with medication since but nobody seems to want to take responsibility. Nobody wants to even discuss my medication let alone talk to me. 

I am having to go to my GP every week so I get 10 minutes to talk to someone!!! I believe Gedling have failed me and are completely uninterested in the health, safety and wellbeing of me or my child. 

There is obviously no point liasing with the team anymore as they are putting me at risk knowing all that they do (the emails they ignore, the medication - over and unprescribed). I attended a meeting in good faith they were interested and wanted to help but I’ve been let down even more and I am in pieces with nobody to talk to. 

I believe people are going to end up severely unwell (or worse) if Gedling LMHT carry on as they are. 

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Responses

Response from Jo Horsley, Adult Mental Health Service Manager - Involvement, experience and volunteer lead for AMH, Nottinghamshire Healthcare NHS Trust 2 months ago
Jo Horsley
Adult Mental Health Service Manager - Involvement, experience and volunteer lead for AMH,
Nottinghamshire Healthcare NHS Trust
Submitted on 05/02/2024 at 10:44
Published on Care Opinion at 10:44


picture of Jo Horsley

Hi Requirementtp53,

I'm sorry to read about your recent experiences with Gedling local mental health team and would like to help if I can. I am the patient experience lead for Adult mental health team and can be contactable via email on

jo.horsley@nottshc.nhs.uk

If you email me your contact details we can chat on the phone or meet in person so I can liaise with the relevant managers who can support you to get appropriate help and support.

Kind Regards

Jo

Jo Horsley

AMH patient experience and involvement lead

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