On reflection, I feel a bit let down by the transplant team in Edinburgh. When my mum was informed that a liver was not suitable for her, we were just abandoned at 10pm in an empty department. No one came near us.
It was soul destroying to see my mums face as she instantly gave up hope. Perhaps someone could just have checked in on us and gave us some condolences and compassion but maybe it is not appropriate. It’s just left me feeling deflated when we were so well informed at other stages of the assessment and process.
The team do a remarkable job but aftercare could be improved and then communication to external trusts. It is a massive responsibility taking home a terminally ill patient on a bus.
"I feel a bit let down by the transplant team"
About: Royal Infirmary of Edinburgh at Little France / Transplants Royal Infirmary of Edinburgh at Little France Transplants EH16 4SA
Posted by Trudi (as ),
Do you have a similar story to tell?
Tell your story & make a difference
››
Responses
See more responses from Sam Slight