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"Time critical medicine for Parkinson's patients"

About: Queen Elizabeth University Hospital Glasgow / Neurosurgery (Ward 64 – 66)

(as the patient),

I am currently admitted to ward 64, room 4, I am a Parkinson's suffer & have had a surgery on my spine. In A&E they where very happy for me to self medicate on my Parkinson's meds; in the ward however, I understand it's their policy to take the meds from me & be responsible for administering them, with the understanding that I'm prescribed by my Parkinson's Consultant & Nurse the strict timings of 2 tablets, 4 times a day from 8am, 12pm, 4pm & 8pm & a modified release one at 10.30 - 11pm.

I'm not sure how it can get to the point that the first 3 doses were approximately 30 minutes late each time & unbelievable the 8pm was given to me at 22.20. I asked at 8:10 & repeatedly after, to the point I'm crying & can't control my tremor. The treatment from the dispensing nurse was basically unacceptable, they said there wasn't anything on my notes stating the timings , well that no one can truly believe surely, as Parkinson's medication is time critical at every dose, not just the one I'm asking repeatedly for.

I had the head nurse practitioner in the ward sit with me, taking notes of all the medication I need, not just the Parkinson's meds, & when I take them all, throughout the day. This was in my mind a simple enough task, easily attached to my notes I'd have thought but apparently there is nothing on my notes.

I feel let down, humiliated & quite frankly exhausted, I never ever want to be admitted later in life when I am unable to speak up for myself, please fix something that I feel needs to be repaired ASAP. 

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Responses

Response from Pamela Philp, Interim Lead Nurse , Neurosurgery, NHS Greater Glasgow and Clyde about a year and a half ago
Pamela Philp
Interim Lead Nurse , Neurosurgery,
NHS Greater Glasgow and Clyde
Submitted on 11/01/2024 at 15:59
Published on Care Opinion at 16:54


Dear Andysmum 16,

Thank you for taking the time to share your experience within our ward. It has obviously been extremely difficult and distressing for you. I am sincerely sorry that you did not receive your medication at the prescribed time, it must have been very worrying and difficult for you to cope with not receiving your medication on time.

I have shared your experience with the ward team and Senior Charge Nurse, whom I understand met with you to ensure there were no further issues with your care.

Your feedback is valued and has been shared with the wider nursing team for learning from your experience. I am sincerely sorry for your experience.

Kind regards

Pamela (Philp)

Interim Lead Nurse, Neurosurgery, OMFS, Critical Care, Interventional Neuroradiology and Theatres

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