I am a chronically ill patient with a number of serious and life threatening conditions.
I was admitted as an emergency over a week ago because I had been without any nutrition for a week after failure to replace my NJ tube. I was promised I would be getting an emergency PEGJ tube after the weekend but over one week later nobody has bothered to get things in motion to place one, nor have I got my NJ tube so I have been without any feed now for almost three weeks which is totally unacceptable given my underlying health issues.
On top of this, I felt belittled and humiliated by a team of doctors who seemed to imply that more problems were more Mental Health related which is ridiculous given I have almost died multiple times over the last few years.
I just want the gastro team to seriously reflect on how chronically ill patients like myself rely on timely care and we need these medical devices to live.
I have wasted another weekend in hospital with no idea when I am going to go to theatre and have my surgical tube places.
I appreciate I am a super complex patient but it really is a straightforward procedure and I should be a priority case as I was told I was in A&E.
"Unacceptable delays for my PEGJ tube"
About: Eastbourne District General Hospital / Accident and emergency Eastbourne District General Hospital Accident and emergency Eastbourne BN21 2UD Eastbourne District General Hospital / Gastroenterology Eastbourne District General Hospital Gastroenterology BN21 2UD
Posted by ChronicallyTrying95 (as ),
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