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"Unacceptable delays for my PEGJ tube"

About: Eastbourne District General Hospital / Accident and emergency Eastbourne District General Hospital / Gastroenterology

(as the patient),

I am a chronically ill patient with a number of serious and life threatening conditions.

I was admitted as an emergency over a week ago because I had been without any nutrition for a week after failure to replace my NJ tube. I was promised I would be getting an emergency PEGJ tube after the weekend but over one week later nobody has bothered to get things in motion to place one, nor have I got my NJ tube so I have been without any feed now for almost three weeks which is totally unacceptable given my underlying health issues.

On top of this, I felt belittled and humiliated by a team of doctors who seemed to imply that more problems were more Mental Health related which is ridiculous given I have almost died multiple times over the last few years.

I just want the gastro team to seriously reflect on how chronically ill patients like myself rely on timely care and we need these medical devices to live.

I have wasted another weekend in hospital with no idea when I am going to go to theatre and have my surgical tube places. 

I appreciate I am a super complex patient but it really is a straightforward procedure and I should be a priority case as I was told I was in A&E.

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Responses

Response from Carly Driver, Deputy Patient Experience Manager, East Sussex Healthcare NHS Trust nearly 2 years ago
Carly Driver
Deputy Patient Experience Manager,
East Sussex Healthcare NHS Trust
Submitted on 10/10/2023 at 08:41
Published on Care Opinion at 08:55


We are sorry to learn that you are experiencing delays with the insertion of a PEGJ tube and recognise the distress this is causing you. As it would appear that you are currently an inpatient at Eastbourne District General Hospital, we would encourage you to speak to the Ward Matron regarding your concerns. Alternatively, you can contact our Patient Experience Team on 0300 131 4784 or email esh-tr.PatientExperience@nhs.net

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