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Venesection treatment

Posted By augustgx97

"Venesection treatment"

About: University Hospital Wishaw / Gastroenterology

(as the patient),

I have a genetic condition called Heamochromatosis. The only treatment is Venesection at a hospital where you have blood taken. Before covid I was receiving regular care and Venesection at the Medical Day Centre in Wishaw General. 

It is now Liver Nurses who are dealing with this treatment but I have not had any appointments for treatment for over 3 years.  I have HFE bloods every 3 months and phone the Liver Nurses with my results. I am informed when I call there are no appointments available and my Ferritin levels have to be much higher.

I noticed a letter in Glasgow Herald from Haemochromatosis UK to Wishaw General highlighting this problem as they had received complaints from people in Lanarkshire.  I have spoken to Haemochromatosis UK about my situation and they say they would never recommend ferritin to reach such a level as it can be detrimental to your health.

I am extremely concerned about it but have no idea when my treatment will start again.

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Responses

Response from Jennifer Montgomery, Improvement Coordinator, Quality Directorate, NHS Lanarkshire nearly 2 years ago
Jennifer Montgomery
Improvement Coordinator, Quality Directorate,
NHS Lanarkshire

Operational Lead for Care Opinion in NHS Lanarkshire

Submitted on 17/08/2023 at 16:52
Published on Care Opinion at 16:52

picture of Jennifer Montgomery

Dear augustqx97,

Thank you for sharing your experience on Care Opinion about the Venesection treatment at University Hospital Wishaw.

I am sorry to hear about the change in your treatment since Covid and that you have no confirmation of when treatment will start back. Could I ask that you contact our Patient Affairs Corporate team so they can look into this further and provide a personal response? I have included their contact details below.

PatientAffairs.Corporate@lanarkshire.scot.nhs.uk

01698 752667

Kind Regards,

Jenni

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