My son (& myself) have hEDS -Hypermobility Ehlers Danlos Syndrome - which is a connective tissue disorder. It means my son can dislocate joints & gets pain in his joints.
We were sent to orthotics at LCH to help with his knee dislocating. The first consultant we saw was incredibly good at knowing a fair bit about Ehlers Danlos Syndrome & the issues that can arise from having the condition. They looked at my son's knees, ankles, feet & hips & could see there was a problem. They rectified those problems with some orthotics. These were a game changer for him.
We've been back twice because my son's grown incredibly quickly, but the last time we were there we saw a new consultant. This consultant was 15 minutes late to the appointment, hadn't read my son's notes, & seemed to have no knowledge of hEDS.
It took me being really firm with the consultant to explain why we were there & what we needed from them. His problem is, the orthotics this time aren't helping & he's in a lot of pain. I feel reluctant to return to this consultant because they came across as quite dismissive.
My son can't currently do what he normally does because as soon as he starts walking, his ankles, knees & hips cause him agonising, burning pain.
I've contacted my GP to find out what I can do.
"Consultant came across as quite dismissive"
About: Lincoln County Hospital / Orthotics Lincoln County Hospital Orthotics Lincoln LN2 5QY
Posted by volanstn86 (as ),
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Update posted by volanstn86 (a parent/guardian) nearly 2 years ago
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