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"Lack of response from the colorectal team"

About: University Hospital Ayr / Endoscopy University Hospital Ayr / Gastroenterology University Hospital Ayr / Medical Oncology

(as the patient),

I have previously had serious bowel cancer and a complicated medical history with chronic sickness. Over the last few years I have again had gastrointestinal problems and I saw a consultant in 2017 at Crosshouse who said I was eating too much fruit and disregarded the history of cancer. In 2020 I had a worsening of symptoms and waited a year to be contacted. I spoke to a consultant from Ayr hospital in 2021 who who also disregarded my cancer history.

This year I have had serious GI bleeds and coincidentally the poo test arrived. It was positive. It took two weeks for them to make an appt for a colonoscopy and a further 7 weeks before the procedure. It was confirmed that I had another cancer. I was referred to the colorectal team. I had a CT scan.

Due to my previous experience I submitted documents to the colorectal team to explain my medical history and my current fears and concerns. I wished for these documents to be considered at the MDT. Due to the response after the MDT I got the impression that my circumstances had not been properly considered. I emailed both the CNS teams and the consultant.

Although in the last week I have emailed the CNS teams 3 times they have never replied although I know they received my emails. The consultant only replied after several days when it is clear my case was reconsidered at the next MDT. I did not find the response satisfactory and asked to be referred to a senior surgeon. So far I have heard nothing.

This is all turning farcical and it feels as though I am not being responded to by the colorectal team merely because I asked some questions which I have a right to do as per the Patients Charter.

Time is ticking by and it is now another 4 weeks since the colonoscopy and I have cancer which is not being treated. The behaviour of the colorectal team I find difficult to believe and I think they are all failing in their duty of care.

This situation is unsatisfactory and nobody appears to be offering me any assistance.

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Responses

Response from Pamela Gibson, Patient Experience Facilitator, Nursing, NHS Ayrshire and Arran 10 months ago
Pamela Gibson
Patient Experience Facilitator, Nursing,
NHS Ayrshire and Arran

Monitor stories and provide administration for NHS Ayrshire & Arran

Submitted on 07/08/2023 at 12:48
Published on Care Opinion at 12:48


picture of Pamela Gibson

Dear Starflame

Thank you for taking the time to share your care experience with us via Care Opinion.

I was very sorry to learn of your poor experience. Please be assured that this is not the person-centred care that we aim for.

We would welcome the opportunity to investigate your concerns in more detail. If that would be helpful, I would be most grateful if you could provide me with your details so I can pass them to the Service. You can leave your contact details on 01292 513942 (voicemail) and I will call you back or via email at aa.patientexperienceteam@aapct.scot.nhs.uk

Kind Regards

Pamela

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