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"Lack of response from the colorectal team"

About: University Hospital Ayr / Endoscopy University Hospital Ayr / Gastroenterology University Hospital Ayr / Medical Oncology

(as the patient),

I have previously had serious bowel cancer and a complicated medical history with chronic sickness. Over the last few years I have again had gastrointestinal problems and I saw a consultant in 2017 at Crosshouse who said I was eating too much fruit and disregarded the history of cancer. In 2020 I had a worsening of symptoms and waited a year to be contacted. I spoke to a consultant from Ayr hospital in 2021 who who also disregarded my cancer history.

This year I have had serious GI bleeds and coincidentally the poo test arrived. It was positive. It took two weeks for them to make an appt for a colonoscopy and a further 7 weeks before the procedure. It was confirmed that I had another cancer. I was referred to the colorectal team. I had a CT scan.

Due to my previous experience I submitted documents to the colorectal team to explain my medical history and my current fears and concerns. I wished for these documents to be considered at the MDT. Due to the response after the MDT I got the impression that my circumstances had not been properly considered. I emailed both the CNS teams and the consultant.

Although in the last week I have emailed the CNS teams 3 times they have never replied although I know they received my emails. The consultant only replied after several days when it is clear my case was reconsidered at the next MDT. I did not find the response satisfactory and asked to be referred to a senior surgeon. So far I have heard nothing.

This is all turning farcical and it feels as though I am not being responded to by the colorectal team merely because I asked some questions which I have a right to do as per the Patients Charter.

Time is ticking by and it is now another 4 weeks since the colonoscopy and I have cancer which is not being treated. The behaviour of the colorectal team I find difficult to believe and I think they are all failing in their duty of care.

This situation is unsatisfactory and nobody appears to be offering me any assistance.

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Responses

Response from Pamela Gibson, Patient Experience Facilitator, Nursing, NHS Ayrshire and Arran nearly 2 years ago
Pamela Gibson
Patient Experience Facilitator, Nursing,
NHS Ayrshire and Arran

Monitor stories and provide administration for NHS Ayrshire & Arran

Submitted on 07/08/2023 at 12:48
Published on Care Opinion at 12:48


picture of Pamela Gibson

Dear Starflame

Thank you for taking the time to share your care experience with us via Care Opinion.

I was very sorry to learn of your poor experience. Please be assured that this is not the person-centred care that we aim for.

We would welcome the opportunity to investigate your concerns in more detail. If that would be helpful, I would be most grateful if you could provide me with your details so I can pass them to the Service. You can leave your contact details on 01292 513942 (voicemail) and I will call you back or via email at aa.patientexperienceteam@aapct.scot.nhs.uk

Kind Regards

Pamela

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