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"Tongue Tie"

About: Adult Health Services / Breastfeeding Support service

(as the patient),

I breastfed my baby from birth but had feeding issues with latch which made it painful for me and difficult for my baby. Baby seemed hungry as was unsettled a lot too, so wasn't getting what they needed from me.

A tongue tie was noticed by midwife when baby was just 4 days old. I had a visit from infant feeding team the next day and so midwife said they would be able to help. At this visit baby had lost 6% of birth weight. The feeding team said they could do nothing for a tongue tie unless referred. They helped with position but this was not solving the real issue.

Midwife then referred for tongue tie when baby was over a week old. Infant feeding spoke with me the next day to explain there had to be a further 3 visits from feeding team before we would be invited to clinic for tongue tie assessment. My baby had since lost even more weight, almost a whole pound under birth weight. I was also in a lot of pain after 2 bouts of mastitis and exhausted from next to no sleep due to baby not settling at all.

The news that we had to wait even more time began to impact my mental health as I was worried my baby would continue to lose weight and I was feeling so unwell. It was recommended I top up with formula and express, this became even more of a burden on top of an already stressful feeding experience.

After 2 weeks breastfeeding, I gave up and switched baby to formula. We have since had tongue tie divided privately and feeding is now improved with baby gaining weight and content. I am very lucky I was able to take baby to be seen privately, not everyone can. I also believe that I could have continued to breastfeed had the tongue tie been taken more seriously and dealt with quickly. It is likely a lot of women give up breastfeeding prematurely as a result of this.

I feel that more training is required in this area so more staff are able to adequately diagnose tongue tie and perform the division procedure. It would help a lot of women and babies in their feeding journeys and reduce unnecessary stress at what should be a joyous time. 

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Responses

Response from Anne Marie Bruce, NHS Lanarkshire 2 years ago
We are preparing to make a change
Anne Marie Bruce
NHS Lanarkshire
Submitted on 21/07/2023 at 10:47
Published on Care Opinion at 11:02


picture of Anne Marie Bruce

Dear puppisps36,

Firstly congratulations on the birth of your baby.

Thank you for taking the time to share your experience on Care Opinion. I am sorry to hear of the problems you have experienced with breastfeeding. Our priority is always to support breastfeeding first, as babies with tongue tie can and do feed well without intervention. Our support staff are well trained to support you with breastfeeding but diagnosing and treating is very specialised so a referral to the clinic was appropriate. On receipt of your referral you should have been offered an additional support visit at home prior to an appointment but apologise if this wasn’t explained clearly enough.

I am pleased to hear that things have now improved for you,and hope you are settling into parenthood. We always want to make things better for our patients and I would like an opportunity to discuss further with you so we can look at our process and see where we could make changes going forward. Please contact me via the infant feeding team on 01698 366710

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Response from Anne Marie Bruce, NHS Lanarkshire nearly 2 years ago
We have made a change
Anne Marie Bruce
NHS Lanarkshire
Submitted on 21/08/2023 at 09:17
Published on Care Opinion at 10:17


picture of Anne Marie Bruce

Hello puppisps36, since your helpful feedback we have made some changes to our system which we hope will make communication clearer. On receipt of the clinic referral we now make a phone call to acknowledge receipt and outline the next steps- this will include arranging a home visit to support breastfeeding if one hasn't already taken place, and emailing out the clinic information leaflet. If no improvement despite a support visit the referral will be put forward for triaging for the next available clinic. Clinics run once or twice a week depending on room availability. We would still like the opportunity to discuss your experience, if you would like to do this please call me on 01698 366710

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