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"Transport from crumlin to the royal hospital"

About: Royal Belfast Hospital for Sick children / Clark Clinic Royal Belfast Hospital for Sick children / Northern Ireland Specialist Transport and Retrieval (NISTAR)

(as a parent/guardian),

We were attending an antenatal apt in the coombe for our baby's cardiac defect.  We were travelling home from Dublin next morning and my waters broke 5wks early on the motorway so turned around and made our way back to the coombe in Dublin.  Our baby boy was delivered in coombe and then transported to Crumlin to have open heart surgery at 1 wk old. 

The TGA and VSD closure was successful however, it was challenging taking him off bypass so ended up on the ecmo machine for 4days and closed his chest up a week later, he spent 3wks in ICU with respiratory problems as his left side of diaphragm is paralysed due to nerve damage from surgery.  He then spent a week and a half on the children's heart ward in crumlin and then got transfered to the Royal in the childrens heartbest ambulance NISTAR by cara & julie and they were amazing. Great support and excellent team work everything went smoothly with their communication and we our here in Clark Clinic now until our boy is ready for home.

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Responses

Response from David Marshall, Service Manager, Child health and NISTAR, Belfast Health and Social Care Trust 9 months ago
David Marshall
Service Manager, Child health and NISTAR,
Belfast Health and Social Care Trust
Submitted on 20/07/2023 at 08:39
Published on Care Opinion at 09:28


On behalf of NISTAR I would like to thank-you for taking the time to provide us with this feedback. I have passed your comment onto Cara and Julie and I know it will mean so much to them to receive your kind words of recognition. It sounds like you have had a very difficult time over the past month. I'm glad that as a team we were able to provide some care and support. I hope your wee boy is doing well and that you get him home soon.

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