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"The current breast screening machinery is useless for me"

About: West Scotland Breast Screening Centre West Scotland Breast Screening Centre / Diagnostics

(as a service user),

Routine Breast Screening - booked in - not least since my mum had breast cancer (& subsequent surgery) when just a little older than me. No cause for concern (no lumps, etc) & have good health. Still working & carer for 2 family members (including my mum).

Health is essential - I encourage others & value the NHS greatly. Thought best to catch up on my own health needs (no doubt other carers also prioritise the ongoing needs of those they support).

However, this procedure turned out to be not discomfort - but unanticipated & excrutiating pain, (that apparently needed to escalate). When I asked about others experience (surely this can't be typical?), it seems that some have passed out due to the (for me) off-the-scale-pain of the crusher machine. I tried to endure as much as I possibly could - first 2 screenings & part of the next (2.5 out of 4).

Compression machines do literally crush you - and pain literally grinds you down. Dentists routinely offer you an local anaesthetic to block out pain. But as a healthy person, I didn't expect tortuous levels of pain to be inflicted by a solid metal machine - on not so solid human flesh.

If human pain is a warning system - and if fairly high levels of women are being tortured by this procedure, surely other less cruel ways must be available to screen the human body.  I felt really peculiar after this experience - quite shaken - with no warnings & no anaesthetic offered either. Would probably have needed painkillers afterwards, as one nipple is still tender (weeks later) & that was with the nurse calling off the last 2 scans.

I have had other types of scans before (essential tools for good health) but none of these inflicted such cruelty. If you were dead, such machines would be great analysers, but if you are a living sentient creature - there are limits to what you can tolerate.

She had asked me not to scream - but unfortunately that's involuntary (as are many body processes), but no escaping both the pressure & the exponential pain from that clamping machine. Normally I'Il always encourage people to go for every health check & treatment - however, now I have discovered that the current breastscreening machinery is useless for me. I'll just have to wait/watch out for any lumps - as my mum did.

I do wonder how many people will be the same as me & health-conscious - but unable to participate further in this particular practice. The nurse did say that scans aren't for everyone -she'll see the suffering, and obviously cares.

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Responses

Response from Cat Graham, Operational Superintendent, West of Scotland Breast Screening, NHS Greater Glasgow and Clyde 9 months ago
Cat Graham
Operational Superintendent, West of Scotland Breast Screening,
NHS Greater Glasgow and Clyde
Submitted on 07/07/2023 at 18:59
Published on Care Opinion on 10/07/2023 at 09:30


Dear Love&Welcome

Many thanks for contacting us regarding your recent appointment. We value all feedback, as it is essential to improving our service.

Firstly, I am so sorry to hear about your mum's previous diagnosis and that you are currently caring for her and other members of your family. I completely agree that looking after your health is essential, particularly if you care for others, as for carers this can often become difficult to prioritise.

I am sorry to hear that you did not have a positive experience at your screening appointment with us and would like to be able to investigate further. Would you be willing to contact me directly at the email address below and provide me with your date of birth/CHI number to allow me to access your record?

Cat.Graham@ggc.scot.nhs.uk

You are completely correct that some women find breast x-rays to be uncomfortable or even painful. This is highlighted in the information leaflet that is sent out with every invitation letter in order to make women aware. As a service we respect every woman's individual choice to stop the examination if necessary. At present mammography remains the most effective diagnostic screening tool available to detect breast cancers at an early stage, which leads to improved prognosis. Please also let me reassure you that all screening equipment, is maintained, tested and used in line with very stringent national legislation and regulations to ensure it is safe for clinical use.

We would encourage all eligible women to attend for breast screening and would be more than willing to arrange for you to discuss your concerns directly with a senior member of clinical staff, to ensure that we can make any future appointments, the best possible experience for you.

In the meantime, as you have mentioned, the current advice according to best practice is to be breast aware and immediately contact your GP if you have any breast concerns.

Many thanks again for bringing this to my attention and I am so grateful for the feedback, so that we can take this opportunity to improve our service further.

Kindest Regards

Cat

Cat Graham

Operational Superintendent

West of Scotland Breast Screening

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