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"Infertility Assessment Clinic"

About: Altnagelvin Area Hospital / Gynaecology FAU (Ward 43)

(as a service user),

In 2022, I was referred to the Infertility Clinic by my GP, after having difficulty conceiving for over 18 months.   I contacted my GP approximately 6 months later to ask if there was any update as to where I was on the list - naturally, I was keen to ascertain how long I may have to wait, as a further 6 months had passed without any success conceiving.  My GP encouraged me to ring the Infertility Clinic at Altnagelvin directly for an update.

I tried to contact the Infertility Clinic via the Altnagelvin switchboard 6 times on 6 separate days.  Each time, I was transferred to an answering machine.  I never received any return calls to messages left.  Eventually, when I did manage to speak to a member of staff by persistently asking switchboard staff to try alternative numbers; I was informed that the routine Infertility Clinic waiting list was 'not active' i.e. no new patients on the list have been seen since lockdown, due to lack of specialist doctors.  I was further advised that many of patients on the list pre-lockdown have not been assessed and it could be many years before I would be offered an appointment.   When I asked about the criteria to be referred to the 'Urgent' list; I was advised a referral to this list was unlikely to make a difference - I could probably expect to wait several years.   As I am approaching my mid-thirties; this was devastating news as I am very aware my biological clock is ticking. 

I felt deflated and broken hearted as I had invested a lot of hope in being examined at the infertility clinic to help me understand why I have been unable to conceive.  If I had not persisted with ringing the clinic; I would have had no idea of the estimated wait times.  When I informed my GP of this news, my GP seemed unaware the list was inactive and kindly apologized for the 'broken system.'

I understand and sympathise with the high workload medical staff are managing with reduced budgets and staff shortages.  However, in the interests of promoting patient wellbeing; I would like to suggest that when referrals are received by the Infertility Clinic, it would be really helpful if a letter could be sent to the patients and their GP, advising that the list is not currently active and/ or providing an estimated wait time.  This would help patients like myself decide whether they need to seek alternative private assessment and to save for the significant costs involved.

I have found that coping with the uncertainty and disappointment of infertility becomes increasingly stressful and more emotionally draining as time progresses.  Research advises that worry and stress can adversely impact the chances of conception.  I feel the lack of communication about extensive waiting lists has compounded the stress and sense of despondency my husband I are feeling as we navigate this process. 

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Responses

Update posted by despondentpatient (a service user)

I posted regarding the lack of communication and information from the Infertility Assessment Clinic. Ironically, I still have not received a response to acknowledge my story or to provide any answers - it is now August.

On behalf of any others going through similar issues -I would appreciate a response. I note that another patient has written a story conveying the distress she has felt about lack of access also.

Response from Brenda McCabe, Lead Midwife of Southern Sector of WHSCT, Maternity, WHSCT nearly 2 years ago
Brenda McCabe
Lead Midwife of Southern Sector of WHSCT, Maternity,
WHSCT
Submitted on 17/08/2023 at 15:13
Published on Care Opinion at 15:53


Dear despondentpatient

My sincere apologies for the delay in the response owing to changes in management of services.

I would like to thank you for corresponding with us and sharing your experience. I am so sorry that you have had such conflict in receiving effective communication regarding your referral and follow up. It is not acceptable to have to made such attempts to locate and speak to the relevant department.

During the COVID-19 pandemic many health care services were affected, so that the predicted crisis impact within the National Health Service (NHS) provision could support the urgent presenting care at that time caused by COVID-19 and this required reallocation of many resources. This was a decision that was implemented across the whole region, in all health care settings.

The Fertility Clinic did, and continues to, accept referrals - this has not changed. However during the pandemic within Gynaecological services, ‘’Red Flag’’ (potential cancer/confirmed cancer) investigations where prioritised for continued service delivery. Now we are post pandemic the all gynaecology services have resumed, to that which had been offered pre the pandemic, including providing a routine Infertility Clinic service. However this has had an impact on waiting times. The current waiting time at present is 2 years for the WHSCT NHS Fertility Service.

I do certainly sympathise with your current situation and I can only empathise with the challenges that you are feeling. I would encourage you to contact your GP to provide you with any available resources to support you in your anxiety in relation to the impact of the fertility issues.

Kind Regards

Brenda McCabe

Acting Head of Midwifery Gynaecology & New Born Hearing Screening Services WHSCT.

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