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"Breathing Space and NHS24"

About: NHS 24 / Breathing Space (Phoneline)

(as a service user),

In 2022, my mum was diagnosed with frontotemporal dementia, having been increasingly unwell for a number of years. She was diagnosed at the end of May. In mid July, my granny (my mum’s mum) who was like a second parent to me, died very suddenly and I was left devastated.

I already had a diagnosis of complex PTSD but this got acutely much worse very quickly and found myself living a life where I was fighting my own mind each day and plunged into a very scary existence with flashbacks and intrusive memories like never before. 

I was advised to call breathing space back when mum was becoming more seriously unwell. 

Unbeknown to them, they’ve saved my life. I can’t remember everyone’s names off hand however I have spoken to James several times. I remember James talking to me the week that my granny died and he was so, so enormously kind. It so happens that when I’ve had another ‘transition’ I’ve called and James has by coincidence (although a pal of mine would say there’s no such thing) answered.  It is so immediately comforting and calming to hear someone who’s been there through it all somehow, telling me I’m doing OK. I remember James telling me over the summer, you’ll get through this and there are still horrible days, things are often a struggle, but he’s right. 

Margaret and Brenda are equally wonderful, and I vividly remember chatting away one night to a lady called Lynsey - I called Lynsey from Aberdeen train station going to visit my mum in care and Lynsey stayed on the call with me from Aberdeen to Insch (about 40 minutes) just chatting and helping me through that journey. I can’t remember exactly what was said now but I remember how I felt and that’s the most important thing. 

Equally NHS24 MH ‘option 1’ - Colin, and Katie are the only two names that stick in memory - Katie because I remember her line, I love a good funeral so I do, the night of my granny’s funeral, which turned my tears to giggles and stayed with me the whole day.

I don’t know what I’d do without you, both an absolutely incredible service. 

Thanks so so so much, much love. 

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Responses

Response from Shona Lawrence, Clinical Governance Lead, Nursing and Care, NHS 24 2 years ago
Shona Lawrence
Clinical Governance Lead, Nursing and Care,
NHS 24
Submitted on 12/04/2023 at 11:20
Published on Care Opinion at 11:20


picture of Shona Lawrence

Dear Anon29

Thank you so much for sharing such a heartfelt story. I'm so pleased our staff within Breathing Space and our Mental Health Hub have been an immense support to you. Well done to them for providing such a positive experience, despite all you are going through. I do wish you well.

I'm sorry to learn about your granny. It sounds as though you both had a great relationship and its understandable that her passing would have affected you greatly. I'm also sorry to learn of your mum's diagnosis. You have clearly had a lot to contend with recently.

I will absolutely ensure your story is shared with the team at Breathing Space and also with our Mental Health Hub staff. For them, such positive feedback on the service they are providing to callers, is very welcome and greatly appreciated.

I note you have mentioned on the train journey with Lynsey that it was how she made you feel that mattered most. You are absolutely correct in that how we feel is hugely important and is what remains with us. I'm glad Lynsey took the time to just 'be' with you when you needed it.

Please don't hesitate to continue to use our services for support going forward. We are here to help and listen when needed.

Thanks again and best wishes for the future.

Take care

Shona

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