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"We need professionals to do their job"

About: Fife Community Services / Community Mental Health Queen Margaret Hospital / Adult mental health Whytemans Brae Hospital / Adult mental health

(as a parent/guardian),

My daughter never took drugs, alcohol or anything that may impact MH, she has epilepsy and minor learning difficulties, a family history of mental health issues.

She suddenly started to see and hear things that weren't happening. Padded her room, wanted walls knocked down, etc. Became erratic and quite frankly terrified. We fought for weeks/months to get her seen by a doctor and psychiatrist, she had to move in with me as couldn't be left alone. 

Highly paranoid over every wee thing. Cars, people, they were all out to get her. Thinks cameras etc are around the house watching her.

Showing huge signs of distress but also refused to speak to psychiatrists as she thought they were also in on it.

After months of phone calls and my daughter - mid-thirties -  walking out and getting lost in a field, trying to get away from it all. Thankfully police found her, we were able to get her into Whytemans Brae to be assessed.

She was experiencing psychosis and thought the dinner area was rigged up and the doctors were in on it. She thought a magazine was telling her things, giving her messages. She didn't trust the staff to tell them so masked a lot of it.

Family visited daily and took her out daily, she seemed to be getting a little better. However, after being discharged, weeks later some symptoms were showing again. 

Her psychiatrist from ward 2, Dunfermline, was building trust with her and she was brave enough to tell them the truth, they were seeing glimpses of the real her. She was terrified and these voices/thoughts were going to get her locked in an asylum.

The Dr said she would get a change of meds. However, family calls to my GP showed no prescription or email to request this had been sent. Numerous calls back and forward every day for couple of weeks, we eventually got the email sent to GP so we could get the medication. 

Things improved again but then after a few months started to deteriorate, now we have a daughter who hasn't left the house in months, who guards the window, who has sat pulling her hair out in frustration and hitting herself, she is exhausted, terrified and has even ran in to an elderly neighbours house (the only time she has left the house other than to go to her hospital app) demanding to know what's going on as she feels there's people in there connected to her through the wall.

Again we chased up for an appointment, because her psychiatrist was off sick - our routine apps had been cancelled. 2 months later we got an app within other doctor who was covering for a few weeks. Again, they saw my daughter in a very distressed state. Crying, pulling her hair out, hitting herself saying she can't take it all anymore and the doctor looked lost. The doctor said they don't know what to do, the mental health wards are full of drugs at the moment and not a safe place for my daughter to be, however I have had to give up my life to provide 24-hour care for her for over 15 months now.

We need to get her to a place where she can be back in her own home as I am not fit to be doing this anymore and she isn't getting better, she is getting worse. I fear we have lost my daughter to mental health and we have been failed by the mental health team and continue to be failed as beds are all taken up with known addicts and the same people I feel are abusing the system. Yes, there will be legitimate cases I know, but my daughter needs help. I can't make her better, we need professionals to do their job. To get my daughter in and assess her properly, to give her a proper diagnosis and to get her on long-term medication that works and to also provide support to help her back in to her own home.

This Dr also told us they'd send a note to GP to increase her meds but that note never came. Over 20 phone calls and failed promised callbacks a week later we eventually got the email sent to docs so we could get the new prescription. I am constantly chasing up medication. How is that a good service? Constant failed promises and Dr's just leaving or off and new ones come in and have no clue about my daughter's journey and end up back at the beginning.

We as a family are at our wit's end. We can't continue like this. How is my girl going to survive this much longer? She is living with constant terror and fear. Help!!!

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Responses

Response from Deon Loudon, Clinical Services Manager, Mental Health, Acute Services, NHS Fife 2 years ago
Deon Loudon
Clinical Services Manager, Mental Health, Acute Services,
NHS Fife
Submitted on 03/04/2023 at 14:45
Published on Care Opinion at 15:27


Thank you for reaching out via Care Opinion to share your experience and seek help. I am one of the managers for mental health services and would like to support you in having your concerns properly reviewed so that we can ensure the service is providing the right response for your daughter and learning from your difficult so that where necessary we can put things right. If you would like to talk to me so I can engage the right people in helping with this, please get in touch via Ann Bain as my PA on telephone 01334 696004.

Kind regards

Deon Loudon, Clinical Services Manager

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