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"Unsatisfactory referral"

About: Victoria Hospital / Dermatology Victoria Hospital / Rheumatology

(as the patient),

I have been unwell over the last few years, it started with being unwell with Covid and then having melanoma in my leg which I received excellent care by the dermatology department in Fife. In January 2022 I started feeling unwell  with my kidney stones and various different problems. I had several blood test taken and I was told that I had high inflammation markers. I was having issues with swallowing and had a camera into my throat to see what was going on. I then had more tests and assured that my inflammation markers had lowered.

Fast forward 6 months later and still feeling below the pall I then went for more blood tests and found out my folate levels where low and my inflammation markers had actually in the previous and current blood tests been elevated. The nurse practitioner that I spoken to wanted to do more tests and at that point I informed about issues with numbness and pain in my feet and shoulders.

Fast forward 9 weeks and stool tests I was then referred to rheumatology. I am now 13 weeks in and having issues with my hands, lower back and feet, so called rheumatology in Fife to find out when I’d be seen to be told I’m under a general review which is a weekend service and they’ve no idea when the next clinics will be.

I feel thoroughly fed up given two years of deteriorating health, I think I’m soon going to have to get signed off work and I’m so tired having to fight to get someone to help me get my health back on track. 

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Responses

Response from Lynne Campbell, Interim Clinical Service Manager, Rheumatology, NHS Fife 13 months ago
Lynne Campbell
Interim Clinical Service Manager, Rheumatology,
NHS Fife
Submitted on 28/03/2023 at 10:24
Published on Care Opinion at 10:24


picture of Lynne Campbell

Dear Leakiz,

I am so sorry to hear of your experience accessing care. I would value the opportunity to speak with you and try to resolve the issues you are having. Please contact me on 01383 623623 ext 29238 Monday to Friday 0830-1630.

Kind regards

Lynne

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Update posted by Leakiz (the patient)

Lynne was extremely helpful in guiding and supporting me with getting an appointment and checking in to ensure I was all set to attend. Her support has been appreciated aas there are times when you just need someone to intervene and remove the burden as you can’t do it all on your own. Massive thank you for doing so, here’s hoping for some answers and treatment plan soon,

Update posted by Leakiz (the patient)

After Lynne’s intervention I have now been seen by rheumatology and have had an X-ray which shows straitening to the curvature in my spine, they believe it’s caused by back spasms which are happening frequently, especially after sitting and coughing, these spasms are debilitating and the medication isn’t working. I have to be referred for an MRI which I was told would be referred mid June. I called yesterday to check and seemingly it’s sitting on a doctor's desk to be actioned but still hasn’t been done.

The original letter asking me to call and confirm where they MRI is required was sent at the start of June and it’s now the beginning of July and according to NHS Fife site it’s a 20 week wait for an MRI. I am back at work and I fear I am going to have to go off sick again due to the spasms in my back and the pains in my feet and hands. I will be in touch with my MP this evening.

Response from Lynne Campbell, Interim Clinical Service Manager, Rheumatology, NHS Fife 10 months ago
Lynne Campbell
Interim Clinical Service Manager, Rheumatology,
NHS Fife
Submitted on 07/07/2023 at 11:32
Published on Care Opinion at 11:32


picture of Lynne Campbell

Dear Leaakiz,

I am sorry to hear of your ongoing challenges. I have left a voice mail asking you to contact me on 01383 623623 ext 29238 Monday to Friday 0830-1630, so we can come to a quick resolution.

Kind regards

Lynne

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