"Feeling like a nuisance"

I was admitted through A&E to ward 2a in March where I was placed in room 201. The next day I saw the consultant on duty and discussed the treatment plan for abscesses on both right and left legs. I had already seen ortho on call team at A&E on the Tuesday for this on going issue and we decided to put me on the urgent ultrasound list and let me go home. I was told to expect a call on the Wednesday morning with a time to come in for the ultrasound.

I had still not received a call by Thursday afternoon so contacted the trauma liaison and was told my name was on list and I would have to just wait. So when spoke to consultant on the Sunday we decided for me to still wait on ultrasound. 

On Sunday I was moved to another bed in my room. I raised concerns about this as I was nebulising for my Asthma and had no access to either an oxygen port or nebuliser machine. I had no buzzer and as someone who is known to take asthma attacks n the night this was concerning. I also had no light so if every light on ward went out at night I had no light to see. This is important as I have a sight impairment

By the Wednesday  I had not seen a doctor from the Sunday and was still waiting on the ultrasound which had been waiting on from the previous Tuesday and had to chase up with the nurse about not seeing doctor. I eventually saw Consultant and they said they would try and chase up the ultrasound. I got the ultrasound on Thursday afternoon and had surgery on the Friday afternoon. But when I arrived back up to the ward I was placed in bed area 7 again even though I had had a GA and nurses could not see me and monitor me.  I am still in this position and if there is a problem during the night I can get help as now even though I have a bell the staff can not here it.

The nurses on the ward are doing an amazing job for the situation the are in.  As a regular in patient I can say this is the worst admission I have experienced and I feel like I have been dumped in a corner and feel like I am a nuisance even though the nurses have tried hard not to make me not feel like this.

I have had been having ongoing issues in regard to my care with this health condition and am covered in scars all over.  I have seen orthopaedics and surgical arguing in front of me as to who has to treat me.  A&E know me very well due to my other health conditions and have said I shouldn't really be going to them as it is an ongoing known condition and not an emergency. They have said there should be a care plan/Treatment pathway sorted.

The issue with this is I don't know when to come in as when I come in early to try and prevent it from becoming a big abscess I am sent home. I am told there nothing there but most of time I'm in 2 or 3 days later with a bigger abscess and have to be admitted and go under a GA. The shortest time for this to happen is 3.5 hours.

I was an inpatient and told them that this was the situation but was not listened to. By time got home it had a head on it. I refused to come back because of this and waited on it popping 2 days later and then went to A&E to have it dealt with. Then if I wait till it is large I am asked why didn't I come in sooner?

The doctors and consultants make me feel like it is my fault or blame it on the medication I use even. A doctor has accused me of having an addiction problem when I asked for certain medication that I know I can take and am not allergic to. This doctor did not talk to me about this or any of my other care teams.

I have spoken to GP's, district nurses and my support workers who have regular contact with my in community, often daily, and they had no concerns and had not been consulted about it. I have asked for this to be removed from my records but it has not been.

I had a meeting with a consultant back in September/October and it was decided to organise an multidisciplinary meet with all the people involved in my care. This was nearly 6 months ago and am still waiting on this and have been told it is now on the 3rd consultant to organise it. I have had no contact or communication regarding this so don't now what is going on.

Being treated as a new case every time means I don't get consistency in my care and am treated as a new trauma every time.

I feel my care is not being proactive it is being reactive and just treating the problem just at that time. I know treating traumas people are only seen once or twice so doesn't matter it they always have different consultant but this doesn't work in regard to my care as every consultant tends to treat it different.

The way I am cared for and treated makes me feel as if I am a nuisance and an inconvenience.