"Unhelpful advice"

My husband has been attending the Newlyn unit for 10 months for Bilateral Nephrostomy change every six weeks.

At the start of January he was fitted with a size ten tube to one nephrostomy to stop leakage from the dressing site. Three days later, while in St Julia’s hospice the site was leaking again.

A few days later the Doctor from the hospice spoke to a consultant who said they would check my husband's notes and as he had got the largest tube available there was nothing they could do. They were less than helpful. My husband then spent a painful, distressing week with a constantly leaking tube while the hospice team wasted precious time trying to find a solution. In desperation they again called the Newlyn unit and spoke to different urologist who told them that my husband could certainly have a bigger tube as the sizing goes up to 14 and as he was now in such an uncomfortable state they would fit him into their list that same day.  The procedure was carried out and the leakage has stopped.

We are absolutely appalled at the unhelpful and very incorrect information given by the first consultant….not to mention the wasted time the hospice team spent on this and the pain, broken sleep and anxiety to my husband and not least myself.