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"Stroke Patient thoughts on improvement"

About: Specialist Therapy Services / Community Stroke Team – South Notts

(as a staff member posting for a patient/service user),

My Story

I suffered  stroke some 19 weeks ago, (just over 4 months ago).  At first I thought I was ok but after 4 weeks and half days hospital, I had had enough of it all and was ready  to come home.

At first I felt ok, but the stroke had a strange effect. I realised I hadn't been able to get down to thinking about it and still find it difficult to do so. I had become sort of muted about life and didn't say much, but then after a week back at Church I took my singing into my hands and went for it. Thank God I did because I wouldn't have made much obvious improvement had I not done this. I went back a week before Easter, some 5 weeks following my stroke and I have been to Church every single occasion since. (thought I would mention that, as it is important to me) I have been singing in Church choirs over 60 years.

I began work with the Nursing Team by way of an interview with Shelley within 1 week of my initial diagnosis saw Roanne (OT) a week later and was able to see Margaret, my speech Therapist a couple of weeks thereafter.  I was able to see 3 Therapists for 3 weeks until Roanne was admitted to hospital for booked surgery. (Is she recovering and indeed recovered well enough to return to her full-time duty? I wish her well whatever).

Her replacement was Rhea who was an OT. I got on well with all the Stroke Team nurses I saw over the next 3 months who helped me make enough progress to bid them farewell. I do not think I would have improved to the extent I have done, had I not seen these 4 Nurses. I shall be forever grateful to them.

I still don't feel well - that is, the same as I was before my stroke and I find that frustrating. However, I realise that it is going to take me longer to recover than I had thought.

My partner's thoughts on my improvement:

My partner was very keen that I should add something to his story under the above heading. So firstly echo his gratitude to all the four therapists he has mentioned. Their incredibly prompt  support, their expertise and advice combined with their friendliness contributed much, I am sure, to my partner's undoubted progress.

I am also impressed that notwithstanding their work with my partner has ended, he is to be reviewed not only six months, but also twelve months from the date of his stroke. I was finally further impressed when he was referred to specialists in the team other than those mentioned, namely Posy and Gavin (forgive me if I have miss recalled his name) being psychologist and physiotherapist respectively to ensure  that no aspect of my partner's health was not considered.

Despite the fact that he still feels, to use his words' unwell' and acknowledging that of course he is still struggles on occasion to do things as he used to, he continues to improve and in my heart (inexpert) opinion, has made enormous progress in what is still relatively a short period of time.  I am confident, as always have been, that he will continue to recover and improve over time.

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Stroke Association, Stroke Helpline, Stroke Association 4 years ago
Stroke Association
Stroke Helpline,
Stroke Association
Submitted on 31/07/2019 at 10:55
Published on Care Opinion at 10:55


We noticed your post and thought you may be interested to hear about the work of the Stroke Association and how we may be able to support you. We are the leading charity in the UK changing the world for people affected by stroke.

I was sorry to hear that you still don't feel well after your stroke, and you are finding this quite frustrating.

You might find it helpful to talk this through with someone on our Stroke Helpline. You may want to know more about stroke and its effects, be looking for practical information and support, or simply need someone to talk to. The Stroke Helpline is open Monday, Thursday and Friday from 9.00am to 5.00pm, Tuesday and Wednesday from 8.00am to 6.00pm and Saturday from 10.00am to 1.00pm. The helpline number is 0303 30 33 100. You can also email us at helpline@stroke.org.uk.

You can also find lots of information about stroke on our website at www.stroke.org.uk where you can read about our services and download all of our publications free of charge. There is also news about our campaigns to improve services for stroke survivors, national and local events and our research programmes.

You might also find it useful to access further support though My Stroke Guide, our online support tool. The guide is designed to support stroke survivors, family members and carers 24 hours a day. Easy-to-read information, advice and videos from the Stroke Association explain everything you need to know about stroke. Our chat forum can connect you to our online community, to find out how others manage their recovery and to a dedicated section for family and friends. You can find out more and self-register by clicking the following link www.mystrokeguide.com

I hope that this is helpful, please do get in touch with us if you would like some support.

Take care,

Stroke Helpline

Stroke Association staff are not medically trained and the information provided does not replace information given to you by your own healthcare provider.

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Response from Claire Lee, Community Stroke Team Lead, South Nottingham Community Stroke Team, Nottingamshire Healthcare NHS Foundation Trust 4 years ago
Claire Lee
Community Stroke Team Lead, South Nottingham Community Stroke Team,
Nottingamshire Healthcare NHS Foundation Trust
Submitted on 02/08/2019 at 08:42
Published on Care Opinion at 08:42


Thank you for taking the time for feedback to us, we really appreciate your comments. It is important to us that our patients tell us how well we are doing / or not so that we can continually learn and improve.

The team work hard to ensure your recovery journey is maximised to its full potential and will therefore be thankful for your feedback. I will ensure the team see this and specifically Roanne, Rhea, Margaret, Posy and Gavin, whom you have mentioned. We are really proud of our clinicians who strive always for the best patient care and so are very pleased that you are both happy with the care you have received.

We hope you continue to recover positively and wish you all the very best.

Thanks

Claire


Community Stroke Team Lead

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