"Disappointing out-patient care."

Initially, was confident in hospital labelled 'outstanding'. After first being given reason to have hope by consultant (and so starting with positive attitude) - that there were long term treatments that could help my symptoms, over time I have watched each bubble of hope burst as nothing has worked and I feel worse than when I began this journey.

I have read other people's comments about some of their negative out-pt experiences. It is upsetting to read their despair. I empathise with them - even my consultant acknowledged in his last report the devastating emotional toll this condition is taking on me. What now?

A treatment plan on hold awaiting an appointment with another consultant (no firm date can be given as yet and no alternative available). Never thought I'd say this - I feel lonely and frightened.

There are lots of positive reviews with good outcomes - I just wish I was one of them and I wish there was support when treatments don't go to plan. At the moment, it seems like a black hole - silence and waiting again.