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Care Opinion

Working age dementia care

Posted By DebMar

"Working age dementia care"

About: Nottinghamshire Healthcare NHS Foundation Trust / Mental Health Services for Older People – Community (City) Nottinghamshire Healthcare NHS Foundation Trust / Mental Health Services for Older People – Community (County) Nottinghamshire Healthcare NHS Foundation Trust / Young Onset Dementia Service

(as a carer),

I just want to acknowledge the work done by the WAD team Sharon Dawn Marie and Magda have all helped us to come to terms with my husbands Alzheimer’s diagnosis.

 To say we were shell shocked was an understatement we waited nearly three years to get the diagnosis and felt so alone, the team where amazing they helped us so much signposting us to different services referring and taking him out to help him find something to do.

Sharon was my direct contact and she was so supportive and as a peer support worker knew exactly what I was saying normalising my concerns.
I cannot thank them enough for everything!! More and more people are being diagnosed with WAD this team are a bridge between the illness and the expectation that only the elderly get dementia I feel that more needs to be done within the NHS for anyone with WAD just simple things like paperwork “Mental Health services for older people” on appointment letters the sign at Highbury stating the same easy fixes. More social places to go to where they are not over 20 30 40 years younger than the people there I feel that Mental Health services are poorly funded Dementia services seem to be poorest within the service. Dementia doesn’t discriminate it could one day be anyone one of us!! Until the day they find a cure we need teams like the WAD team x
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Responses

Response from Tim Constable, CPN, Adult Mental Health - Mansfield, Nottinghamshire Healthcare NHS Trust 4 years ago
Tim Constable
CPN, Adult Mental Health - Mansfield,
Nottinghamshire Healthcare NHS Trust

Submitted on 10/05/2019 at 08:50
Published on Care Opinion at 08:50

Dear DebMar

thank you for your message of thanks and support for the WAD team. I'm not involved with them but it is great to read that you are not only getting the help you need, but also the high standard of the care.

you are right that we can't rest on our laurels and throughout the Trust we are looking to improve our services and strengthen links with other care providers.

Please accept my best wishes for the future

Tim

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Response from Tracey Evans, Consultant OT, Working Age Dementia, MHSOP, Nottinghamshire Healthcare NHS Foundation Trust 4 years ago
We are preparing to make a change
Tracey Evans
Consultant OT, Working Age Dementia, MHSOP,
Nottinghamshire Healthcare NHS Foundation Trust

Submitted on 15/05/2019 at 17:03
Published on Care Opinion on 16/05/2019 at 10:05

Dear DebMar

Thankyou so much for taking the time to provide such kind comments on the support you and your husband received from the Working age dementia Team at such a difficult time. It is lovely to hear that you have found the work they have done with you and your husband so helpful. I have passed on your comments to the team, and the members of staff you have identified, and they were really pleased to hear your message of thanks.

Thankyou also for your suggestions regarding paperwork /letter heads and signs which I will take forward for discussion.

I agree with you that more needs to be done for individuals with working age dementia and to challenge the view that only older adults can develop dementia. We will, as a service, continue to champion the needs of younger people with dementia to improve services and raise awareness within the Trust, with other care providers (including social care and voluntary organisations) and our commissioners.

Thankyou once again

Best wishes

Tracey Evans

OT Consultant

Working Age Dementia Service

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