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"Treatment of learning disabled patient"

About: Royal Oldham Hospital

My learning disabled son attended to have an abcess lanced. A general anaesthetic was considered most appropriate to avoid unnecessary stress. Because of pressure on the system he was given the choice, after a 5 hour wait, of continuing to wait, with no guarantee the operation would be carried out that day and possibly having to spend the night in hospital, and returning the next day. Unsurprisingly he preferred the latter, even though there was no guarantee it would be done the next day either.

After another 4 hour wait (which was really 5 as we arrived early) I asked the staff if they could speed things up as he was getting very stressed and my efforts to keep him calm less successful. He was told he could either wait- again with no guarantee of an operation and a possible overnight stay which frightened him - or have it done under a local anaesthetic. He chose the latter, which was carried out caringly and competently. His views were ascertained and respected, he could understand the language used, ie it avoided jargon and long words and he was encouraged throughout: I was impressed by the way all staff treated him. However I think there should be a system for speeding up the treatment of learning disabled people. I managed to keep my son calm: on other occasions he would have broken down. And I know other learning disabled people who would have left the hospital or been asked to leave as they were upsetting people and disrupting your work. May I suggest you ask someone to contact the Mencap “Treat me well” scheme and collaborate in drawing up guidelines for the treatment of learning disabled people?

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Responses

Response from Royal Oldham Hospital 5 years ago
Royal Oldham Hospital
Submitted on 18/02/2019 at 12:12
Published on nhs.uk at 13:07


Thank you for taking the time to share your comments.

We were sorry to learn of your unsatisfactory experience when you and your son visited General Surgery at The Royal Oldham Hospital. We hope we can assure you that the Trust strives to provide patients with excellent care and experience. We are disappointed that we did not achieve this completely for you on this occasion, however we are pleased to hear the procedure and your son's care went well. Please accept our apologies for the inconvenience your wait and the re-scheduling of your son’s surgery caused you.

We forwarded your comments and suggestions onto our Learning Disability Liaison Nurse team and they were also very sorry to hear of your son’ s experience. They would encourage you to contact them directly if your son has to attend the hospital again to discuss his needs. They confirmed they are working closely with The Mencap Treat Me Well campaign and have co-produced a banner and poster with them that focusses on the hospital making reasonable adjustments; these should be in hospital departments soon. You can access further information about the Learning Disability Service on the Trust website, Learning Disability and Autism pages, at www.pat.nhs.uk/our-services/learning-disability-service.htm

Should you remain dissatisfied and wish to discuss your experience further, please contact the Patient Advice and Liaison Service (PALS) at your earliest opportunity on telephone 0161 604 5897, or email pals@pat.nhs.uk quoting that you have been advised to do so via this web site, and they will do their best to address your concerns.

King regards

The Patient Experience Team

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