I am under the care of Glasgow’s Royal Children’s Hospital and the IBD + Gastrointestinal team. I live in the outer hebrides (400 miles from them). & the IBD nurses have not provided their care promised to me during our first phone call (1 year ago) to the extent that I don’t expect any sort of messages or phone calls from them at all.
Some examples of this include; leaving an email regarding my extreme pain and lack of sleep whilst on the modulen diet for over two weeks before I received a reply& missing or being late for phone calls by several HOURS & when I was first hospitalised through a & e I was phoned and I sobbed to a particular nurse about how isolated from my care support I felt and I was promised WEEKLY emails and phone calls...I haven’t had a phone call or email to ask how things are for months & I can appreciate that it must be difficult to work with someone so far away however it’s their job & I have completely given up any sort of hope for them and feel even more isolated than before. I feel that the people who’s job it is to check up on me don’t care enough to even email me for over 8 weeks.
"Lack of care"
About: Royal Hospital for Children (Glasgow) / Gastroenterology Royal Hospital for Children (Glasgow) Gastroenterology Glasgow G51 4TF
Posted by julietgs56 (as ),
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