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"I’m getting to the point where I am really struggling"

About: Pilgrim Hospital / Pain Management

(as the patient),

On attending my appointment last week I requested further investigation into my back and joint problem. It’s been 8 years since I suffered the accident and it’s getting to the point I struggle to get out of bed. It affects me at work. I get numbness in my legs and lose feeling. I keep getting prescribed painkillers but I don’t actually know what the problem is. It’s getting progressively worse and I’m getting to the point where I am really struggling.

I told the nurse this who replied with an mri scan won’t show anything. You will probably never find out the cause of you back pain as there probably isn’t anything there and it’s something in your mind. I ended up breaking down and saying I was worried what if I end up losing my mobility and end up in a wheelchair as I keep getting loss of feeling in my legs and sometimes in my arms and pins and needles. The nurse just laughed and said that won’t happen. By this point I was crying because o couldn’t hold it back any longer and the nurse just replied with. Are you on anti depressants? I think you’d benefit from some. To which I said no I am not I’m upset because I am in pain every single day and I’m not getting any help or finding out what on earth the actual problem is. To which the nurse said they would refer me back to the doctor in charge of pain management to request to have injected (or iv I can’t remember) pain relief. Which isn’t what I want at all, I just want to find out what is wrong with me. In my mid 20's I should not be struggling to this point now! I have always had really good experiences with the nhs but this staff member had really upset me.  

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Responses

Response from Brittany Hodgson, Support Manager, Trust Wide Pain Management, United Lincolnshire Hospitals NHS Trust 5 years ago
Brittany Hodgson
Support Manager, Trust Wide Pain Management,
United Lincolnshire Hospitals NHS Trust
Submitted on 23/11/2018 at 14:24
Published on Care Opinion at 14:28


Dear Hca2018

Thank you for taking the time to tell us your story and I am deeply sorry that you had a really bad experience last week.

Firstly, pain management is not a diagnostic speciality and we are here to help patients manage their pain and not to diagnose what is causing the pain. If a diagnosis is wanted then you need to talk to your GP for them to request the necessary investigations and refer to the relevant specialities.

Unfortunately as Care Opinion is anonymous, we are not able to identify the nurse you have mentioned but that the nurse should not assume and we are sorry if you felt the comments from the nurse were inappropriate and unhelpful.

If we can get a little more information from you, we can investigate this further. In the first instance if you could contact our PALS team at Pilgrim 01205 446243 or pals@ULH.nhs.uk the team will pass me your details.

Sorry again that the consultations has upset you and we endeavour to look into this further once a little more information has been received.

Regards

Brittany

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