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"Lack of communication in skin cancer clinic concerning"

(as a service user),

My husband was diagnosed with a malignant melanoma (skin cancer) eighteen months ago. Subsequently he had surgery to excise it and at the same time a sentinel lymph node biopsy. The good news was that it had not spread to the lymph nodes. We then put this behind us and carried on with our lives. 

One month ago he noticed a lump above the old excision. Within ten days he was seen by the same consultant, as his previous procedure, at the skin cancer clinic and was fast tracked to have it surgically removed. This happened very quickly which confirmed to us that this was serious.

After the day surgery all communication seemed to fall apart. We were expecting to receive the results from the clinic of whether the cancer had returned within ten days but sadly this did not happen.

Unexpectedly two weeks later we received a letter from my husbands GP saying how sorry they were to hear that he had another malignant melanoma. We were in shock as we had not been told! After some fraught messages on answer machines we eventually spoke to a nurse in the clinic who confirmed this was true. The nurse critisised the GP for getting in touch (we were taken aback at this) as in their words they was copied into notes taken at a meeting and should not have got in touch with us. Bizarrely we were glad that our GP cared enough about my husband to get in touch.

Four days later we had a meeting with the consultant who confirmed to us that it was another malignant melanoma. My husband was going to be referred for an emergency CT scan (within two weeks) to see if the cancer had spread. Both of us were very worried which was understandable. 

Ten days later we are still waiting for the CT scan appt with no communication from the skin cancer clinic. In frustration and to settle our worrying minds my husband phoned the clinic  to enquire what had happened. When the nurse returned his call they advised him that the consultant was on holidays for 9 weeks (no mention of who was taking care of their patients in the meantime) and that the consultant had put in the wrong request for his CT scan. The consultant had, in error, requested a non urgent CT scan (5-6 weeks waiting time) rather than an urgent CT scan (within 2 weeks waiting time). So the nurse was going to try and chase another consultant to put in a request for a urgent CT scan appt. We are still waiting to hear about the outcome of this. 

I am speechless at the lack of professionalism in this clinic. Why did the consultant not tell my husband they would be on a leave of absence and advise him of the person who would be standing in for them whilst they were away? Why did the nurses on the clinic not cross check that the diagnostic tests requested were correct? Most importantly who is managing my husbands care? 

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Responses

Response from Royal Devon & Exeter Hospital (Wonford) 5 years ago
Royal Devon & Exeter Hospital (Wonford)
Submitted on 06/08/2018 at 09:19
Published on nhs.uk at 10:06


Thank you for taking the time to provide your feedback. We are very sorry to hear about your husbands experience and we would welcome the opportunity to discuss this further with you. In order for us to fully investigate your concerns and address the issues you have raised, we would be grateful if you could contact out PALS department on 01392 402093 or rde-tr.PALS@nhs.net so that they can take some further details from you. We hope to hear from you soon so that these matters can be looked into. Once again, we are very sorry for your husband's experience.

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