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"Waiting too long for diagnosis & feeling fobbed..."

About: Hull Royal Infirmary / Neurology

I had an mri scan on 4 February & was diagnosed with systematic scleroderma on 6 February before the scan i was asked if id had a head injury or anything metallic in my head in the past which I replied no, after id been in the scanner for approximately 10minuites the radiologist asked me twice if i was sure i hadnt had a head injury or metallic in the past which i replield no. When i hadnt heard anything after 4 weeks i phoned i was told they were writing report, after not hearing anything i phoned again 10 days later & was told nothing significant had been found but the report was waiting for the registrar to sign , since the scan my symptoms have become worse & i have all the symtoms of atherosclerosis which is directly linked to systematic scleroderma ( hardening of the blood vessels) i still havent heard anything 47 days afer my MRI & feel badly let down. Ive got an appointment with my GP on 29 march & if i havent heard anything or am told there's nothing found ill have to pay for a private consultation.

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Responses

Response from Hull Royal Infirmary 5 years ago
Hull Royal Infirmary
Submitted on 30/04/2018 at 12:03
Published on nhs.uk at 13:06


Thank you for placing your posting on the NHS Choices website. We are sorry to read of your recent experience.

We will ensure your comments are shared with the Neurology team.

In order to address the concerns you have raised, we would like to invite you to contact our Patient Advice & Liaison Service (PALS) who will be able to take further details and advise accordingly.

The PALS service can be contacted on:

• Telephone: (01482) 623065

• Email: pals@hey.nhs.uk

• Online: https://www.hey.nhs.uk/patients-and-visitors/feedback/

Thank you once again for taking the time to provide us with your views on local NHS services.

Kind regards,

Patient Experience Department

Hull and East Yorkshire Hospitals NHS Trust.

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