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"ADULT INSULIN PUMP PATIENTS DO NOT ACCEPT..."

About: Royal Cornwall Hospital (Treliske) / Endocrinology

I moved to Cornwall while using an insulin pump with NHS funding initiated by another CCG area. I was told I had no choice of where I could be treated but I could only attend the Royal Cornwall Hospital (Treliske), for insulin pump clinic attendance. Here I would have to be reviewed in order to continue receiving NHS funding for my treatment, which also at Treliske includes a very rare and unusual thing of signing a "patient contract" (which I don't believe patients with other conditions requiring similar cost treatments are made to sign).

What followed was a string of approx 6 appointments issued then cancelled by the hospital within a few weeks of each being issued. In the mean time, as I had not received one appointment that the hospital would keep, my medical supplies that my life depended on were running out. Various local NHS medical staff and myself attempted to speak with specialist staff there for approx 10 weeks, leaving phone messages, sending emails and formal letters, but no-one there was interested to help, they do not communicate with either patients, GP's or any community based NHS staff.

At this point I gave in and after much NHS fighting I managed to organize myself an appointment in Devon. The Royal Cornwall Hospital at Treliske clearly do not want to treat adult insulin pump patients. This has a simple answer- don't treat them, close your clinic officially and let other health care providers who are committed to the job deal with it.

It appears that the insulin pump clinic at Treliske operates to block adult patients from accessing insulin pump therapy. Its lead for diabetes should feel thoroughly ashamed at how this hospital treats adult type 1 diabetic patients on insulin pumps, they really need to change there attitude, be retrained or should be closed down.

AVOID THIS HOSPITAL AT ALL COSTS IF YOU ARE AN ADULT TYPE 1 DIABETIC USING AN INSULIN PUMP, A TERRIBLE HOSPITAL AND TERRIBLE EXPERIENCE!

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Responses

Response from Michaela Johnson, QI Manager, Quality Improvement, Royal Cornwall Hopitals NHS Trust 5 years ago
Michaela Johnson
QI Manager, Quality Improvement,
Royal Cornwall Hopitals NHS Trust
Submitted on 23/04/2018 at 11:22
Published on Care Opinion at 14:52


picture of Michaela Johnson

Dear Anonymous

Thank you for taking the time to leave feedback on here for Endocrinology at Royal Cornwall Hospital, firstly please accept my apologies for the delay in responding to you. I am saddened to read of your experience as this is certainly not what we would expect for a patient of ours to receive.

We would really like to look into this particular event for you; if you would be happy for us to do so or if there are any other concerns we can help to resolve for you, please contact our Patient and Family Experience (Complaints) team by leaving a message on 01872 252793 or email rcht.patientexperience@nhs.net. A Case Worker will get back to you within 3-5 working days to discuss your concerns with you.

I am sorry again for your distressing experience and I hope that we will be able to look into this further for you.

With kind regards

Michaela Brewer, Patient Experience Coordinator

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Response from Michaela Johnson, QI Manager, Quality Improvement, Royal Cornwall Hopitals NHS Trust 5 years ago
Michaela Johnson
QI Manager, Quality Improvement,
Royal Cornwall Hopitals NHS Trust
Submitted on 17/05/2018 at 14:32
Published on Care Opinion at 16:19


picture of Michaela Johnson

Dear Anonymous

I shared your feedback with our Endocrinology and Diabetic Medicine team and they would welcome the opportunity to discuss the events you have described further. They are unaware of the issues you have raised being experienced by any of their patients so would like to investigate, but to do so would require more details. Once they have investigated they would be happy to respond to you direct and we will of course provide a response here also with any changes made to the service as a result.

As above, if you would be happy for them to do so, please contact our Patient and Family Experience (Complaints) team with your details and they will ensure that your details are passed on to them.

With kind regards

Michaela Brewer, Patient & Family Experience Coordinator

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