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Care Opinion

Communication about care needs

Posted By Gymgym

"Communication about care needs"

About: Grantham & District Hospital

(as the patient),

So, I have fluid on the brain (hydrocephalus) I have a shunt which is tubing that drains the fluid off my brain and a pump it’s connected to. I went to Grantham hospital as I was told by Nottingham hospital to go there as it’s my nearest hospital.

I was seen promptly by a lovely nurse and then a doctor came in and had no idea about the condition and even googled what could be wrong with me!

They then said they will scan me to which I said I wasn’t sure I can be outside of Nottingham as my shunt has a chip that is set to certain settings to help my condition and scans can reset it! So I told them to contact Nottingham to double check. They then told me they haven’t the time to contact them! So I explained more I don’t think I can be scanned!

So they called them reluctantly and I can be in a CT scan but no other scan unless specialist doctor is there. After all this they told me not to ever ask a doctor to contact another for advice as it’s a waste of time .. this is my life we are discussing if I had been scanned without specialist doctors in another scan it could reset my shunt and I’ll over drain n die!

They were telling me not to go to that hospital with my problem! I found this very very unprofessional!

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Responses

Response from Jennie Negus, Head of Patient Experience, United Lincolnshire Hospitals NHS Trust 6 years ago
Jennie Negus
Head of Patient Experience,
United Lincolnshire Hospitals NHS Trust

Submitted on 15/02/2018 at 15:55
Published on Care Opinion at 15:56

picture of Jennie Negus

Dear Gymgym,

Thank you for taking the time to post this feedback.

I am extremely sorry to read the of the problems you encountered when you came to Grantham Hospital, and I have passed your comments on to the team management for their consideration.

We would very much like to be able to look at this episode in more detail and to ensure that, should you have the need to visit us again, we are in a position to fully support you.

Could I please ask you to e-mail me personally at jennie.negus@ulh.nhs.uk with a few more details, such as your name, so we can review your attendance and any future needs.

Thank you again for taking the time to use Care Opinion to leave us your feedback, and I look forward to hearing from you again shortly.

With best regards,

Jennie Negus,

Deputy Chief Nurse

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