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"DIdn't deal with the whole picture & felt very..."

Got lost in this rabbit hole for far too long. Most of the care-coordinators/key workers are very polite and pleasant seeming people, but were just not equipped to understand the whole of my situation and never seemed to have much idea of how unwell I actually am and how bad my clinical depression and crippling dissociation is.

How it completely impacts how I come across and affects my memory, speech and cognitive ability (no I am not stupid- no, I did not need an IQ test!!!!!!!!)

Being subjected to this really affected me for a long while afterwards -- I was a high achieving child/teenager before developing these problems and being left to rot by everybody).

A couple of the people I saw (to be fair they were newer to the role) just seem completely clueless as to what to do, and were actually talking to me like a child.

The huge role an undiagnosed developmental disorder played in all this was totally missed. Also, some had no idea what dissociation was and had to look it up to help me -- I had printed off the same material myself years ago this person did).

Others were aware of it but only in the context of dissociative identity disorder and in more immediately recognisable situations of a person experiencing trauma.

Despite having little alternative help until March/April this year and knowing my future is bleak I am very happy to be away from this service.

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Responses

Response from Mariner House 5 years ago
Mariner House
Submitted on 22/06/2018 at 15:12
Published on nhs.uk at 16:06


We are pleased that you found our staff to be polite but are concerned about your report of the lack of understanding of problems associated with disassociation.

While disassociation may be a symptom in several mental health conditions, it is more rare in it diagnosable form and it may be that some of the approaches you describe were to exclude differential diagnosis; but in which case this should have been clearly explained.

We do have some clinical psychologists in the Trust who have had specialist training in the aetiology, diagnosis and treatment of dissociative disorders and who are available to offer advice to clinical teams. We do hope the help you have accessed has continued to have a positive impact, but also that you may consider a re-referral to Mariner House especially if your symptoms worsen again.

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