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"Lack of support for baby's tongue tie"

About: NHS Lanarkshire

(as a parent/guardian),

My baby has a tongue tie. He is bottle fed due to medication I take which in my experience in the eyes of the NHS already makes me a failure. I requested a tongue tie division from my GP at my baby's 6 week check and they agreed to refer him. This referral has now been cancelled by my other child's paediatrician because my baby is “thriving”. Yes he is gaining weight however he wants to feed constantly, has a poor latch on the bottle (we’ve tried lots of different ones), clicks his tongue whilst feeding and fails to finish a bottle often waking up screaming shortly after. He also swallows an awful lot of air during feeding and struggled to latch when I tried to breastfeed.

My other child struggled when weaning often choking and gagging due to their tongue tie which was eventually cut under a general anaesthetic. To this day my child's speech is still affected no thanks to their tongue tie which I feel was neglected. 

In my experience bottlefed babies are treated differently to breastfed babies. I intend to make a complaint about the handling of this referral but having spent much of the day so far crying and feeling like I am a failure and that I have let my son down. I think I would have been better supported had I breastfed. I feel it’s unjust and unfair for referrals to be cancelled without even reviewing a baby or at the very least referring the child on to a more appropriate service. I await your response. 

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Responses

Response from Jim Murray, Service Manager, Childrens Services, Wishaw Health Centre, NHS Lanarkshire 6 years ago
Jim Murray
Service Manager, Childrens Services, Wishaw Health Centre,
NHS Lanarkshire
Submitted on 03/01/2018 at 09:44
Published on Care Opinion at 11:08


picture of Jim Murray

Dear giftcb38,

I am sorry to hear that you feel the response to your request has not been followed through. To allow us look into the reasoning of the decisions around your child care you can either raise directly with the Paediatrician involved or if you'd rather, please contact our Patient Affairs department to leave your details.

They can be contacted on:

patientaffairs.primarycare@lanarkshire.scot.nhs.uk

01698 858321

Regards

Jim Murray

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Response from Laura Jack, Service Manager, Specialist Children's Health Services Unit (SCSHU) inc. Paediatric & CAMHS, NHS Lanarkshire 6 years ago
Laura Jack
Service Manager, Specialist Children's Health Services Unit (SCSHU) inc. Paediatric & CAMHS,
NHS Lanarkshire
Submitted on 03/01/2018 at 19:18
Published on Care Opinion on 04/01/2018 at 15:16


picture of Laura Jack

Dear giftcb38,

Thank you for getting in touch with our Patient Affairs Department today. As discussed, we are now investigating your concerns further and will be in touch in due course with the contact details you have provided.

Thanks

Laura

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