I was diagnosed with MS around 18 years ago.
Earlier this year I developed severe breathing difficulties. I rang the ms nurse and it took several days to get a reply, during which time I thought I was going to die. Despite having informed the consultants of breathing difficulties in the past - like having a belt tied around my chest, the consultant said it was probably nothing to do with ms and to see my GP. I did that and got referred to a chest specialist. Went through a range of tests including a really horrible one which was getting a tube put into my lungs with a camera on the end. In the end the chest specialist could not arrive at a diagnosis and prescribed a course of steroids. The steroids helped a lot and my breathing improved but months later it's still not 100% back to normal. I strongly suspect that it was something to do with ms and should have had a head MRI straight away to check for new lesions and if found, prescribed IV steroids.
"MS Patient"
About: The Royal Victoria Infirmary / Neurology The Royal Victoria Infirmary Neurology NE1 4LP
Posted via nhs.uk
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