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"Long wait for diagnosis"

About: Chapel Allerton Hospital / Rheumatology

I turned up for my appointment in August to find it had been cancelled, which I obviously had not been informed about. I had taken the day off work to attend. Thankfully I was still seen though later than the original appointment time which I didn't mind. During my appointment I was informed that I had an autoimmune disease but the doctor didn't want to provide any leaflets until they had done further tests. I suspect that's because the illness I have is often present with other auto immune diseases. I had blood taken and also provided a urine sample.

I received a follow up appointment letter for mid-October. I have been worried sick about what my diagnosis will be so imagine my despair when I received a letter rearranging my appointment to December. I am simply not prepared to wait that long for a diagnosis when I am already worried sick. Everyone unfortunate enough to have an autoimmune disease knows that stress must be avoided but it's impossible in this instance.

I immediately called the advice line only for that to be an answering machine service! This is a total joke.

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Responses

Response from Leeds Teaching Hospitals NHS Trust 6 years ago
Submitted on 24/10/2017 at 16:52
Published on Care Opinion at 19:07


Dear Anonymous

Thank you for taking the time to write to us.

I am very sorry to hear about the delays in your appointments and understand that this must be a very worrying time for you. I also apologise that you were unable to contact our advice line.

Our Pals Team would be more than happy to look into the matters you have raised, however, there is not enough information included in your post for investigation, and I would therefore ask that you contact our Trust’s Patient Advise and Liaison Service (PALS).

The contact details are - Patient Advise and Liaison Service (PALS) on 0113 206 6261 or alternatively email patientexperience.leedsth@nhs.net

Kindest regards

Rosie

Senior Nurse

Patient Experience

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