"Psychology for Cystic Fibrosis"

After years of having no psychological support to help deal with life with cystic fibrosis, finally a few years ago our CF team managed to get funding for a Clinical Psychologist for CF. This was amazing, I cannot explain how this has changed my life, but with working progress.

Its not just about having CF its about life in general but unfortunately with any CF like any illness, its about how life affects your illness. For me I have had some struggles and my CF suffered. Until we got our amazing Psychologist. For me, she is just as important as my CF consultant and I would like to be able to speak to her in confidence as and when possible and needed. However, unfortunately, our Psychologist has not permanent residence in our new multi million pound hospital! Due to this, we are unable to have our sessions which are very important weekly to help keep me and others as mentally well as possible so that we can then look after our illness. Its not appropriate to have sessions over a phone. This is really upsetting, we have waited so long for the help, we have an amazing psychologist who NHS should be proud of, now we risk losing that due to no permanent place to run our patient appointments. I think there needs to be a better understanding of our needs and a permanent place for our sessions to be held. Very very unhappy!