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"Palliative care"

About: Royal Cornwall Hospital (Treliske) / General medicine

(as a service user),

My mother had been treated in critical care unit by the most amazing nurses and staff you will ever wish to meet. However it turned into a palliative care issue within a week. Her life supports and everything bar drugs to keep her comfortable were withdrawn. We were told that she would pass within two hours up to two days. Here we are nearly a week later.

Hospice care was discussed but we have suddenly been moved to a private room in a ward. We feel we have been dumped here, no thought with how the family will cope. Someone is with Mom at all times until she passes this is what my dad wants. However in critical care there was space to make a drink and a recliner chair so he could sleep near mom. Now there is nothing.

There needs to be systems put in place for palliative care where relatives can also be comfortable to look after them. The management don't seem to care. I understand this is a hospital but compassion in end of life care needs to be given thought in this hospital. Please do not read this as a knock at the nursing staff, they are exceptional in critical care (not quite so in wards) they are admirable in a hard job.

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Responses

Response from Royal Cornwall Hospitals NHS Trust 6 years ago
Submitted on 29/08/2017 at 15:53
Published on Care Opinion at 16:49


Dear Sir/Madam

I am really sorry to hear that your mother is at end of life and am so sorry that our care for you, your Dad and rest of family is causing you further distress at this difficult time. I would really like to get either a Ward Sister or Matron to speak with you and hear your concerns so that they have the opportunity to put things right at this important time for you all.

I understand if you do not feel comfortable speaking with the Ward Sister/Matron direct and would like to offer to do this on your behalf if this is your wish. My direct number is (01872) 252760 or you can email me at rcht.patientexperience@nhs.net

Once again, I am sorry to hear your sad news and your concerns and hope that we can help to support you and your family better.

Yours faithfully

Julie Hughes, Patient Experience Manager

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by jocur5 (a service user)

Unfortunately there is no way to put things right. We have been in contact with numerous sources now. Our only hope is that everyone can learn from this and no one has to go through this again. Your end of life policy needs to be learnt and adhered too.

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