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"Cardiology - GP communication"

About: Royal Infirmary of Edinburgh at Little France / Cardiology & Coronary Care Unit

(as a service user),

I have had irritating symptoms that have become gradually worse over the last 10 years, then much more frequent when I started a different medication (for another issue).

The doctor who prescribed the medication asked that I get seen by cardiology. After about a month I see cardiology. I don't mind waiting, my symptoms aren't going to kill me, and up until recently they've not prevented me from functioning normally.

However, after the 24 hour holter device was attached and detached, and being told multiple times 'your symptoms are normal ' I am told to 'phone back' in 1-2 weeks for results. I wait 2. Then get told 'don't phone here, phone your GP'

I phone GP. GP says nothing there, phone cardiology. I wait another 2 weeks. Phone cardiology, get told that results will be sent to gp ... but arent there yet.

6 weeks I waited, and all I am told, over the phone, from a receptionist yeah tape shows your pulse goes up when you have symptoms, theres no conduction issues, ok bye.

I am well aware of this. I didn't think there WAS a conduction issue in the first place. I want to know what I can do to stop the tachycardia. It doesn't just 'go fast', it's extremely uncomfortable, physically exhausting, causes lightheadedness especially on standing (which GP doesn't believe as there's no obvious postural drop in BP), nausea, very short lived visual disturbance with loud tinnitus accompanying it (there are many more but I try not to go on about the others because I am aware a lot are probably unconnected and I'm too worried about being labelled as having 'health anxiety' or hypochondria or something if I go on about all of them) -

when this happens multiple times a day when I am working, , looking after children etc - I have already asked if I can take a small dose of beta blocker in the meantime during symptomatic episodes, and was told 'wait til results from ECG'. But now there's no follow up from it because the tape showed I'm obviously just a silly hysterical person with no insight into their apparent 'anxiety'. (words not used but insinuation is there)

Anyway, I decided to give up and self medicate which is actually working fine for the most part. It's not difficult to get a private prescription these days.

I know the NHS is overstretched. I know there are no staff. I work in the NHS, have done for many years. All I wanted was for someone to actually believe how much these unexplained tachycardic episodes are impacting on me and just say if it's ok to take something for symptomatic management.

For the record, I have already tried all the 'caffeine/stimulant avoidance, keeping hydrated, avoiding alcohol etc etc, I exercise regularly, im not overweight, I dont smoke, yet I still feel like a complete and utter waste of space and time.

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Responses

Response from Helen Wallace, Patient Experience Lead, Royal Infirmary of Edinburgh, NHS Lothian 6 years ago
Helen Wallace
Patient Experience Lead, Royal Infirmary of Edinburgh,
NHS Lothian
Submitted on 11/07/2017 at 09:37
Published on Care Opinion at 11:29


Dear JenAcro

Thank you for taking the time to share your experience with us. I am really sorry to hear that you have had such a difficult time. The Clinical Service Manager for Cardiology would be keen to discuss this in more detail if you feel it would be helpful.

If you can contact me directly on 0131 242 6155 I would be happy to pass on your details so that she can ring you back

Many thanks

Helen

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Response from Jeannette Morrison, Head of Patient Experience, NHS Lothian 6 years ago
Jeannette Morrison
Head of Patient Experience,
NHS Lothian
Submitted on 12/07/2017 at 10:10
Published on Care Opinion at 16:14


Dear JenAcro

Thank you for sharing your feedback with us. Like Helen, I am sorry to hear of your experiences as it sounds as though this has been a difficult and anxious time for you.

We would be happy to look into this for you and would be grateful if you can please contact the Patient Experience Team:


Email: feedback@nhslothian.scot.nhs.uk

Telephone: 0131 536 3370

Kind regards

Jeannette

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