"We feel let down"

We were given a largest Invacare action junior 3 chair for our child who is only 5. I cannot lift her in and out easily since I suffer a chronic muscular condition and your physios knew this. Our daughter needed easy transfer in and out. We were given a fully upright wheelchair where my daughter flops in and she suffers an awful neuromuscular disease which means she flops forwards etc. This was not considered during assessment and we were not asked what her needs were throughout the day and how she tires easily.

She has always needed a tilt and space wheelchair for her needs because she struggles to sit upright for more than an hour well. We were denied a tilt and space wheelchair on grounds my child can sit up for short periods. Her scoliosis is lower lumbar putting pressure on her spine and it causes pain if she doesn't tilt back and rest. This was also not taken into consideration whatsoever. We are disgusted by the lack of knowledge about our child. We were told by physio that the wheelchair is only really a transportation tool and not be used out all day anyway so if our child was tired we should not go out. That feels like discrimination against us as a family who cant enjoy a day out because they fail to provide a decent wheelchair.

My childs condition is worse than last 5 years yet she has been given tilt and space last 5 years...we need justification why we are being denied some basic duty of care and the ability for her to enjoy going out and about as that is her only way of getting out. She relies on that equipment daily to enjoy a quality life. We feel let down and are complaining.