"The service they are now able to provide is very reduced and not helpful"

About: Bromley Healthcare / Bladder and bowel management (continence)

(as a parent/guardian),

My sons have been seen at the Enuresis Clinic over several years, the older one now successfully dry at night, the second one, still wet.

The service has recently been passed over to another team and is under the Bladder and Bowel Clinic. The staff I see are the same and very pleasant but unfortunately the service they are now able to provide is very reduced and not helpful, and I suspect due to management who are not actively aware of the impact of changes they implement on the front line.

Appointments are now no longer possible out of school hours, which is not helpful when the child has regular follow-up appointments every 6 weeks, meaning they are regularly having to miss teaching.

Alarms are now no longer provided, when these were very successful with our older child becoming dry within a fortnight, after the use of an alarm.

I understand this is due to patients not returning the alarm. We did and it seems unfair that those who play by the rules are penalised. Couldn't a deposit system be created to encourage return?

We were offered medication, but this seems a more invasive method, when the child had signs of some dry nights, hence it isn't the lack of a hormone causing wetness.

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Responses

Response from Amanda Mayo, Head of Integrated Care - Bromley ICN, Operations Directorate, Bromley Healthcare We are preparing to make a change

picture of Amanda Mayo

Thank you for taking the time to post your experiences on Patient Opinion. I can feel your frustration, as any parent would.

We welcome feedback and I hope that we have addressed the points you have raised. We work hard to ensure that service changes do not negatively impact patient care and I am sorry that in your experience you feel our changes have.

Bromley Healthcare have extended the amount of clinics and now provide the service in the holidays which we didn't before. There are clinics held on 4 afternoons a week until 5pm so it should be possible to get an appointment after school. Interestingly, some of these appointments are not utilised. As a result of your posting we will consider changing one clinic to an evening one and then review suitability for our patients. When we have made a decision on this change we will post this on Patient Opinion

The alarms are expensive and were not being returned in the majority of cases. As a result we did not have enough alarms to meet demand. We understand that this is a problem nationwide. As a NHS service we have to continually review how we spend public money and at the time this did not seem an effective use of money.

I will ask the Bladder and Bowel Service Lead to review your suggestion of taking a deposit on what you feel is a valuable resource.

We would like to look into the care provision to your child. Would you be able to email me with your child's name and date of birth? My email address is amanda.mayo@bromleyhealthcare-cic.nhs.uk

Kind regards

Amanda

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Response from Amanda Mayo, Head of Integrated Care - Bromley ICN, Operations Directorate, Bromley Healthcare

picture of Amanda Mayo

I have received an update from the Service Lead. I understand that the alarms are available from ERIC.

Their Helpline is available on 0845 370 8008 or via http://www.eric.org.uk/pages/shop

I understand that there are quite a few alarms that are available from ERIC. You would be able to discuss which one would suit your child's needs with the nurses that your son sees.

I hope that this is helpful

Kind regards

Amanda

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Response from Amanda Mayo, Head of Integrated Care - Bromley ICN, Operations Directorate, Bromley Healthcare We have made a change

picture of Amanda Mayo

Thank you for getting in touch via my email. I will email you separately however I wanted to update this posting and highlight what we have done in response to your posting.

The Bladder and Bowel Service Lead has reviewed their clinic times. We have made available 6 additional appointments each week for follow ups after school so this should really help school age children attend and get the help they need.

We have also reviewed the need to provide a service after 17.00 each day. At the moment it is not felt that this is needed however it will be constantly reviewed through demand and patient requests and can be instated at any time if deemed.

Once again we are grateful for your feedback so we could make the change highlighted above

Kind regards

Amanda

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