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Annual visit to rheumatologist consultant

Posted By Helen52

"Annual visit to rheumatologist consultant"

About: Lincoln County Hospital / Rheumatology

(as the patient),

About 18 years ago I was diagnosed with raynouds. Over last few years I've been seeing consultant at rheumatology. At this visit I was told that my hands are now affected by Scleroderma. It was a big blow to me, but, life has to go on.

There is no cure.

As a result I was advised to have blood tests which were done on site (I found it really good saving me time going to other part of hospital) and as things got worse to see consultant every 6 month, plus regular scans of lungs etc. which is reassuring.

It would be useful if some extra information have been given, for example about Scleroderma and any organisations which could help.

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Update posted by Helen52 (the patient)

Dear Charlotte,

Thank you for you reply/comment.

When I was writing my story, I mentioned lack of literature thinking of other patients. I have an access and reasonable knowledge especially of rainaids (having it for several years). I don't know much about Scleroderma.. I feel it would be useful to offer information, where those who do not need would not take.

I know of "stuk", but am unaware of other sites, so thank you for that.

Since being diagnosed with Scleroderma I joined stuk and trying to be proactive, but there are questions coming to my mind. Is there someone I could talk in hospital before seeing consultant again, which could take months or more?

Once more thanks for your reply.

Kind regards.

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