"discharge and medication for my disabled child"

On admission to hospital my disabled child had her medication locked away (clearly good practice). The concern was she had suffered a stroke following an epileptic seizure. The medication helps prevent seizures - she takes 10 medications per day in 4 doses, 2 of the medications were unlicensed, so dispensed directly to us from GOSH. On discharge, staff refused to return the medication before it was prescribed by pharmacy. During the day my daughter had been sick and therefore still required 10 doses however we had no medication until someone could return to the ward and collect it after pharmacy prescribed it. Pharmacy could not prescribe it so we were just given it back. Withholding medication from a disabled child is good practice how? Particularly as the medication was to prevent epilepsy and that was the reason she suffered from paralysis in the first place. Care on the ward was otherwise exemplary.