"Told I don't meet requirements for treament of NRSpA"

About: NHS Norwich CCG Norfolk & Norwich University Hospital / Rheumatology

(as the patient),

I have had NRSpa for 14 years now. It is a life limiting condition. I recently been accepted by the NNUH to start my treatment usint anti-TNF treatment. I was due to start any day. I went to the Rheumatology department this morning and have been told, I do not have enough lesions on my spine to qualify for treatment. I think this is disgraceful. I have followed advice, I went threough the qualification criteria, and now this. I am 39 years old and need this treatment. I currently work full time, but it has been becoming more difficult with regards to the pain. I do not want to come to work on a lot of pain medication as I need to concentrate, but not having this treatment, my result in me having more time off of work, or even possible not work at all. I thought it would be in the best interest of everyone that I be a productive working person for as long as I possibly can and not to rely on benefits to get by. I want the Norwich CCG to re-visit my treatment decision.

Do you have a similar story to tell? Tell your story & make a difference ››


Response from Sarah Eastwood, PALS Manager, Norfolk and Norwich University Hospitals NHS Foundation Trust

Dear Patient

I write further to your comments you have made about your treatment decision and I am sorry to read your concerns. If you would like to contact PALS (Patient Advice and Liaison Service) at the Norfolk and Norwich Hospital on 01603 289045 or email us at pals@nnuh.nhs.uk we will be pleased to look into this further for you.

Alternatively, if you prefer to contact the Norwich CCG, you can do this through the NEL Commissioning Support Unit. I have provided their contact details below which you may find helpful:

Tel: 01603 595857 Email NELCSU.AngliaComplaints@nhs.net Address: NHS North and East London Commissioning Support Unit, Lakeside 400, Old Chapel Way, Broadland Business Park, Thorpe St Andrew, Norwich, NR7 0WG

With kind regards

Sarah Eastwood, PALS Manager

  • ASM3 thinks this response is helpful
    {{helpful-1}} of {{totalOthers()}} other people think so too