"Kidney cancer disaster"

About: Leicester City PCT Leicester General Hospital / Nephrology

(as the patient),

An emergency scan took 6 weeks to arrange and I believe I had to contact my MP before I could obtain cancer treatment. My employers were told I had a large kidney cyst and they wanted me back at work, naturally. When I received my notes it was described as "massive" in one place and "huge" in another. On the Bosniak scale it was class III, which was likely malignant. I felt that none of this was discussed with me. I feel I was refused access to an oncologist and any details of my cancer.

I won't describe what the experience was like because I think otherwise it would be labeled inflammatory. To make matters worse the epidural failed because the pre-op didn't pick up a very large mole on my back so the anaesthetist did his best, which I wouldn't have minded if I hadn't been left for 12 hours without pain relief. I believe my medical notes diverge from reality, and I apparently asked for pain relief after the epidural was removed.

I won up - it only hurt if I tried to move or of someone touched my abdomen. It was when the surgeon returned the next day and I nearly ripped his arm off that I think I got morphine. Unbelievably, I felt like they rebuked me for not using it, but I craved sleep and unconsciousness and they wanted me to stay awake.

In the last few weeks I noticed what I think is petechiae on my feet, which I don’t think is a good sign. I am in bad health generally and showed to this to my GP. I felt like I was virtually bundled out of the office.

The NHS site says that I should dial 999, and I think my medical history probably demands it, but I had considered seeing my GP first to show I'm not hysterical, though actually it's probably irresponsible on my part. I think I need to sort this problem out. If I can't get any sensible comment I'll then go to A & E.

Because I am under the care of a consultant Urologist, then anything affecting my kidneys I think is his responsibility. However, I feel that my urologist has no interest in my kidneys and ignores any information because I think he is only looking for metasteses in my lungs. I believe he considers my right kidney was referred and is now gone. I think if anything else is wrong it would have to b re-referred.

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Response from Leicester General Hospital

Thank you for taking the time to leave your comments about your experience at Leicester General Hospital, we are incredibly sorry that it was not the best experience for you. We realise a significant amount of time has passed since you posted your comment and we would like to sincerely apologise that we did respond to in a timely manner. We have since updated our process of responding to reviews posted on NHS Choices and are now committed to making sure we respond to comments within 21 days of the date they are posted. If you would still like you comment or concern to be investigated, please contact PILS on 08081 788337 or online at www.leicestershospitals.nhs.uk/patients/patient-welfare/patient-information-and-liaison-service/contact-form/. If you have any other specific questions or comments, please feel free to contact us on communications@uhl-tr.nhs.uk. Thank you Communications Team Leicester’s Hospitals

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