"My Dad's end of life care in Hospital"
About: Crosshouse Hospital / General Medicine Crosshouse Hospital General Medicine KA2 0BE
Posted by Guilt (as ),
As an former NHS employee I am reluctant to complain, however the events of my dad's end of life care was so shocking that it has taken me 2 years to even speak about it. The most significant feeling is guilt, I let my dad down when he needed me most.
My father suffered a heart attack and a mini stroke, over the next few months we tried to care for him at home but with increasing dementia and a few serious falls, we put dad in the care of a local nursing home. No complaints at all for the wonderful care he received there.
However, he suffered another stroke and was admitted to hospital. The stroke had robbed him of his speech but he still knew us, still responded by gestures. The doctor told us he would be unable to swallow and had pneumonia and told us he was be put on a End Of Life Care Plan and would probably only survive 2-3 days.
By the 5th day we questioned the diagnosis and dad was bright and alert, had no trouble swallowing, no breathing problems. The doctor then told us that actually he didn't have pneumonia. The doctors never came to consult with us, in fact, although we were by dad's bedside 24/7, even the nurses never spoke, they attended to his drip etc and never utter a word, either to us, or to dad.
To cut the story short - it took dad 14 days to die and I truly believe he was basically starved to death. We trusted that the medical team knew what was best but on hindsight, I firmly believe they didn't, they went down a route and we went along with it.
I know I was in shock at the time and not thinking straight and I shall never forgive myself for not fighting for my dad.