"written off by new consultant"

About: Chapel Allerton Hospital

Took 15 yrs to get this far for mctd/eds diagnosis. In three yrs two visits, got a connective tissue diagnosis. Next visit new doctor. Took one look at my sad emtional state. Sent me for physio and wrote on my notes not connective tissue. Deteriated greatly since and now 20 yrs later, have 3 children identical issues but manage them alone isolated with no diagnosis and limited daily life routine if you can call it that. I dont feel nhs are their for the very vunerable.sorry but I finally asked for help and didnt get it.im 32.

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Response from Leeds Teaching Hospitals

Dear Natasha

Thank you for taking the time to bring your concerns to our attentions.

I am very sorry to read that you feel you have had such a lack of support and care, Unfortunately your post does not have enough information for us to investigate the issues you have raised, therefore, I would ask that you contact our Patient Advice and Liaison Service (PALS) on 0113 206 6261 or alternatively email patientexperience.leedsth@nhs.net

With kind regards


Senior Nurse

Patient Experience