"Can't find a good word to say.."

About: James Paget University Hospital

Over the past 7 months I have been blue lighted to JPUH a lot of times and admitted to the adolescent ward more times than I can remember. I was greeted by nothing but stupidity each time... For example - 3 times before diagnosis with asthma, I was admitted to A&E and the children's ward with breathing difficulties and decreased oxygen levels. After staying on the ward and having more attacks during the night where My oxygen levels where dropping I was told it's probably anxiety because my heart rate keeps going all over the place. I accepted these words because who's not to believe a professional hay? Well after it started happening again I was rushed back to the hospital with a serve asthma attack the people who treated me said "it would take a fool to have missed this". My next problem... For 11 weeks to this date I have been suffering with extreme right abdomen pain, after going to the gp they rushed me to hospital. When getting to the hospital they didn't run any tests and sent me home. I collapsed the next day and ended up back in A&E they did and ultra sound of my appendix and ovaries and said I can't see a problem here it's all in your head. I mentioned to them on each occasion I had been passing blood in my urine each time the symptom was just passed off. After a lot more visits to the GP I found myself back in A&E where I told them I thought I had a kidney stone, where I was told not to be silly they can't find anything. After many more admissions I finally got them to scan my kidneys which revealed a 17mm kidney stone which I am awaiting surgery for. If the trust had just listened to what I had said my problems would have been solved along time ago, I would be pain free and would not have to worry about if any other problems occur trying to get treatment, because god knows what would happen next time. Last but not least - on my last admission to the adolescent ward a nurse asked my mum if she thought I was doing this for attention because I had a lot of admissions, they made me see a mental health nurse who when realising I had been admitted all of these times for genuine reasons laughed and joked about how your trust is run.. It's a joke, I'm genuinely scared if I become critically ill. If I lived closer to NNUH I would definitely go there instead.

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Response from James Paget University Hospital

I was sorry to read your post, and that you have been in pain. I'm not clear from what you said whether you have had the opportunity to talk to a senior member of the team so you and we can understand all the issues and move forward. We could do this through our Patient Advice and Liaison Service - more details on our website at this link http://www.jpaget.nhs.uk/patients-visitors/patient-advice-liaison-service-(pals)-and-complaints/. Or you can contact me direct. I very much hope you do. Ann Filby, Head of Communications, 01493 452162

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