"Patient Choice and funding"
About: Bedford Hospital South Wing / Clinical haematology Bedford Hospital South Wing Clinical haematology MK42 9DJ NHS Bedfordshire CCG NHS Bedfordshire CCG SG17 5QB St Bartholomew's Hospital St Bartholomew's Hospital EC1A 7BE
Posted by slip (as ),
Some months ago, my GP diagnosed that I have M.E.. He did not suggest what help I could get. I was discussing my M.E. symptoms with my consultant haematologist and she said that she would write to my doctor and recommend he refer me to the M.E. referral service of my choice. I live in Bedfordshire, where there is no M E. clinic, and after careful research, decided that St Barts Hospital offered the most appropriate service for my symptoms.
My consultant wrote to my GP in November (2013). I heard nothing, so after three phone calls to my GP's secretary - the latest being last week - asking why my GP had not referred me, she said that he had just referred me to Bedfordshire M.E. Support Group. So it had taken him three months to get round to writing a letter. I said that I wanted to go to St Bart's and that I thought I had a choice. She said that funding would have to be applied for if I were to be referred there and that there wasn't any as "things were changing".
I have an appointment to see my GP next week and was wondering if anyone out there might be able to give me some reliable information about patient choice and funding.