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"Brilliant team supporting patients who have chronic pain"

About: Mental Health Community Services / Pain Management Program

(as a service user),

In the early eighties, I was diagnosed with Hodgkin's Lymphoma, my story is about the effects of treatment and my journey.

I can safely say that there is not a system in my body that hasn't been damaged by the radiation treatment and the chemotherapy. I feel there is no true joined up thinking when it comes to dealing with me. I am seen as complex and these days you are seen by a specialist in whatever area when something goes wrong. I feel waiting lists are pathetic, but once I was seen things may happen!

This experience with the Northern Trust has been one of the best. The team who work to support patients who have chronic pain are just brilliant. I have learned a lot and have been able to make a number of changes to my lifestyle to help myself. In my opinion GP services are too quick to up the dosage of medication as they are not equipped with the knowledge to deal with people like me.

I am now able to drop the number of painkillers and medications to treat neurological damage and I feel so much better for it. I have changed how I manage the pain by listening to my body, resting and mindfulness. A bit of everything. The exercises are important too. I am hoping that I have the confidence to keep this going without their support. Sadly I am someone who does much better with someone watching me or in a group setting. 

I would most definitely recommend this to anyone out there who really wants to make changes. I don't want to get addicted to medication. There are some which I know I have to take for the rest of my life and I really don't wish to have anymore which are a permanent fixture.

I know that because of my treatment and the aging process I will have other issues, so I am trying to do the best I can for as long as I can. With this teams help I feel that I can give it a good try.  

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Responses

Response from NHSCT nearly 2 years ago
Submitted on 16/08/2022 at 16:18
Published on Care Opinion at 16:18


Hi romeopt85,

Thank you for taking the time to provide feedback on your experience of the Pain Management Programme. It is always encouraging to hear that our service is helping.

It seems PMP was able to provide the type of help and support you needed albeit time limited. I am delighted that you have gained good tips and encouragement throughout the programme which has allowed you to be able to reduce some medications. Also delighted to hear that you are using the exercises and relaxation techniques taught during the programme to help manage your pain. I hope you continue with the progress you have already made.

I will share your comments with the rest of the PMP team. I know they will be very encouraged to read this, as am I.

Thank you again.

Donna Spiers - Pain Management Programme.

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