This is Care Opinion [siteRegion]. Did you want Care Opinion [usersRegionBasedOnIP]?
Care Opinion

My diagnosis

Posted By charaqr83

"My diagnosis"

About: Belfast Health & Social Care Trust

(as a service user),

I have a rare disease. I found a hospital in London that specialises in my disease.

I visited them and was advised by them I could be referred by my GP for treatment. I did this in 2018. I successfully travelled to 2 appointments in 2019 prior to a scheduled operation May 2019.

Belfast Trust intervened 5 days before the operation and cancelled it... saying it could be done in Belfast. I'm still waiting on this operation. I've had continued deterioration in my face...the operation was to prevent this.

I've lost faith in my treatment and don't trust the healthcare system... I did everything for first the few years that my consultant asked. I've found that since I've started doing what I want and my consultant has just dropped me.  

I don't know where I am with my care now...

I'm depressed, anxious and my life is hard due to that decision to cancel that treatment.  I feel I've been wronged.

More about:
Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Máire Alexander, Patient and Client Experience Manager, Patient and Client Experience Team, Belfast Health and Social Care Trust nearly 2 years ago
Máire Alexander
Patient and Client Experience Manager, Patient and Client Experience Team,
Belfast Health and Social Care Trust

Submitted on 15/08/2022 at 12:48
Published on Care Opinion at 12:48

picture of Máire Alexander

Dear charaqr83,

My name is Máire Alexander and I am the Patient and Client Experience Manager within the Belfast Trust.

I want to acknowledge how hard this situation must be and that you feel like you have lost faith in your care and for that I am very sorry.

I would like to be able to support you to get more information from the service that is dealing with you and ensure that the appropriate managers are aware of the issues that you have had. Would you be able to email me at maire.alexander@belfasttrust.hscni.net so that I can direct your story to the correct person?

I want to thank you for being brave enough to share your story with us, and I hope that it helps to rebuild your trust in the system, even in a small way.

I look forward to hearing from you.

Máire

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Opinions
Next Response j
Previous Response k