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"ENT failures"

About: Royal Hospital for Children and Young People (Edinburgh) / Ear, Nose & Throat

(as a parent/guardian),

My son saw an ENT (Ear Nose & Throat) consultant in December after fighting for months! This was because of recurring ear infections and monthly sometimes weekly antibiotics. We were told that he would need to have a sleep apnea test he was being put on the waiting list along with the waiting list to have grommets fitted.

We waited months for sleep apnea test equipment after my son was sitting in limbo for two months before he was even put on this list.

Called last week for an update on his waiting time on grommets he isn’t even on the waiting list, the staff members attitude was oh you can complain but it won’t change anything what a fantastic attitude considering this is effecting my sons speech and language development never mind the emotional, psychological or physical impacts these ear infections are causing him.

He’s had three courses of antibiotics in just over two weeks, screams in pain a lot of the time. But don’t worry it’s ok. We have had a 2nd urgent emergency referral request sent from

GPs response was he has an appointment late June. Oh well that’s ok then he can have more antibiotics and painkillers. Still no further forward with his care. It’s neglect and causing my son scarring in his ears and more than likely further health complications and long term health problems.

I feel awful for any parent going through the same. Lack of care for a child’s holistic development absolutely negligent care. Might I add we have been to A and E who are doing another letter which will fall on the generic response waiting list. I will not be contacting the patient experience team. Done this previously falls on excuses. 

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Responses

Response from Louise Fegan, Lead Nurse for Quality Improvement and Standards, Royal Hospital for Children and Young People, NHS Lothian nearly 2 years ago
Louise Fegan
Lead Nurse for Quality Improvement and Standards, Royal Hospital for Children and Young People,
NHS Lothian
Submitted on 10/06/2022 at 10:43
Published on Care Opinion at 10:54


Can I first thank you for using Care Opinion to post your story as it is by receiving this feedback we can try and improve the services we provide.

My name is Louise and I am so sorry that the experience you had fell below one we would have hoped for. I want to investigate this fully therefore I am going to need a bit more time to liase with the correct ENT department to get the the most accurate information that I can to try and resolve this for you.

Thank you for your patience and I will respond again when I have more information.

Louise

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Response from Louise Davies, Patient Experience Officer, Patient Experience Team, NHS Lothian nearly 2 years ago
Louise Davies
Patient Experience Officer, Patient Experience Team,
NHS Lothian
Submitted on 15/07/2022 at 14:59
Published on Care Opinion at 14:59


picture of Louise Davies

Hi magpie1992

I am really sorry to hear of your situation and the lack of care and treatment provided to your son.

Please accept my sincere apologies for the delay in providing you with a follow up response to your Care Opinion post.

I can confirm your story has been reviewed by the Clinical Management Team. Unfortunately, they are unable to provide further comments without knowing more information. Please can I ask you to contact Shirley Thomson, Clinical Service Manager, to provide more details? Her number is 01506 522201 and she will be more than happy to look into this for you.

Thank you, and apologies again for the delay in getting back to you on this.

Best wishes

Louise

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