I am living 200 miles away and this had been related to me by my brother on the phone. His current condition is that he has a fistula leaking faecal matter now about 10 months after a stoma reversal. Previously he has been advised that no immediate action would be taken and time would hopefully heal the fistula by itself. He has been monitored locally for his Crohn's disease and wound treatment and had been doing fine.
At the beginning of April he suffered an episode of high fever and called an ambulance which took him to Monklands. The fever apparently resolved quickly, but then he was visited by a doctor who told him very definitely that the hospital were going to treat the condition thus: put on a low-residue diet, possibly tube-fed, to rest the bowel, and then in a timescale of about 6 weeks, surgery if the fistula wasn't healing. I learned about this 4 days later. So everyone mentally preparing for a long stay in hospital, and welcome the idea that treatment was on its way.
Today he has called me to say that he has been discharged home, as a result of another doctor informing him that no, there would be no such intervention at the moment and as he seems well again, he was to go back home and resume the long wait for the fistula to resolve itself in time - it is too soon supposedly to do an intervention.
No explanation as to how this totally contradictory situation has arisen. It seems that the doctors either disagree about suitable treatment, or never talk to each other about the patients. How can the NHS doctors expect hapless patients to trust them when they are faced with this very distressing debacle? Is it too much to ask that an ill person be told ONE definitive story about what's to be done to him?
"My brother's distressing experience"
About: University Hospital Monklands / Endoscopy University Hospital Monklands Endoscopy ML6 0JS University Hospital Monklands / Gastroenterology (Ward 10) University Hospital Monklands Gastroenterology (Ward 10) ML6 0JS
Posted by ElizW (as ),
Responses
See more responses from Jean MacDonald
Update posted by ElizW (a relative) 2 years ago
See more responses from Jean MacDonald
Update posted by ElizW (a relative) 2 years ago