This is Care Opinion [siteRegion]. Did you want Care Opinion [usersRegionBasedOnIP]?

"Cancer Treatment Last Year"

About: Beatson West of Scotland Cancer Centre Forth Valley Royal Hospital / Ear, nose and throat

(as the patient),

I was treated in Forth Valley Royal and the Beatson (Gartnavel) last year for a Nasopharyngeal Tumour. One real positive I can take from my diagnosis is that I have seen our NHS at it's very best. Having never really been ill before it was a daunting prospect, age 57, to be facing cancer. 

The double chemotherapy, I found to be fine. I religiously took the medication prescribed to me to help me through this stage of my treatment and even managed to complete part of the West Highland Way while connected to a chemotherapy pump. 

I did find the radiotherapy or rather its side effects to be rather brutal. When I look back there are negatives in terms of the side effects of the treatments but there are so many positives I can take from my experience. I feel fortunate that I have met some of the most dedicated professionals ever, many of whom I can only describe as inspirational. Consultants, Doctors, Nurses, Radiography Staff, Radiologists, Pharmacists, Auxiliary Nurses, Receptionists, Domestic Staff who all played their part in turning a potentially life threatening diagnosis into a positive experience. 

Today I have to wear hearing aids since my hearing was affected by the chemotherapy drugs. The high likelihood of this happening was explained to me by my oncology doctor prior to my treatment commencing. I have been given great hearing aids to overcome this deficiency so I don't see this as a problem. I have no back teeth in the top of my mouth since they had to be removed prior to the radiotherapy commencing. Again not a problem, I watch what I eat and will at some point in the future get my dentist to address this. I also have a dry mouth and throat at times but this seems to be improving. I do not consider any of these lasting side effects to be life changing, they will not hinder my progress in any way. In a strange way they serve as a constant reminder of how lucky I am to have come through cancer treatment and still be on the right side of the turf, three stones lighter. 

I am very fortunate that my wife is a nurse who supported me through my cancer journey as did the rest of my family. My wife's knowledge of cancer (though not head and neck cancers) helped us through. In the close future I would like to offer my services to support others who find themselves in the position I once was. Support is needed not only for the patient but also for the family and friends of the patient. Recovery is long and at times improvement seems to almost grind to a halt. I remember my wife saying 'don't look back at how you were feeling yesterday think back a fortnight. How were you feeling then'? 

I hold both the Forth Valley Royal Staff and (Gartnavel) Beatson Staff involved in my treatment in the very highest regard  and will be forever grateful for their dedication. 

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Nicole McInally, Patient Experience and Public Involvement Project Manager, PEPI, NHS Greater Glasgow and Clyde 2 years ago
Nicole McInally
Patient Experience and Public Involvement Project Manager, PEPI,
NHS Greater Glasgow and Clyde
Submitted on 19/08/2021 at 10:01
Published on Care Opinion at 10:01


picture of Nicole McInally

Dear capricornuseq94

Thank you so much for taking the time to provide this feedback. It must have been a difficult time for you and I am so glad that you had the support from your wife and family. It is very reassuring to read that you were so well cared for as I know the team at the Beatson strive to provide the highest standard of care. I will share your feedback with them and I know they will be delighted to hear this. I am glad that you are recovering well and that you have such a positive outlook while having to deal with the side effects of treatment. I wish you all the best in your continued recovery.

Kindest regards

Margaret Gray

Clinical Service Manager

Specialist Oncology

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Response from Susan Davidson, Oncology Unit Manager, Oncology, NHS Forth Valley 2 years ago
Susan Davidson
Oncology Unit Manager, Oncology,
NHS Forth Valley
Submitted on 19/08/2021 at 16:50
Published on Care Opinion on 20/08/2021 at 09:57


Thank you for taking the time to present such positive feedback, it is reassuring to hear that the care you received was to the highest standard that we strive to provide.

I am glad to hear that you continue to remain positive through what is a challenging time with side effects and appreciate the importance of having such loving support from your wife and family.

Your feedback has been shared with the clinical team who were and will continue to be involved with your care as you continue to recover, this was very much appreciated.

On behalf of all the team may I wish you all the best as you continue your recovery.

Susan Davidson

Oncology Manager, Forth Valley Royal Hospital

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Opinions
Next Response j
Previous Response k